Andy B

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Andy B

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Relationship to Diabetes
Type 1
My 10 year old daughter has just been diagnosed with type 1 diabetes.If this was'nt bad enough my missus read last night that sufferers can expect to knock 20 years off there life expectancy.Has anyone else heard this?
 
welcome to the forum ! Im a T2 so cant help you too much but there are quite a few parents on here who im sure will log on soon who will help you out X
 
Hi Andy,
Sorry to hear your daughter has joined this very special group. My 14 yrs old was diagnosed 2 years ago, so I can imagine what you are feeling. There is all sorts of info out there, some good some not so good. It can be hard to take it all in and not be scared by the bad stuff! Most important thing is getting your daughter stable and settled into a routine. You will be less likely to pick up on the negatives when you see how well she's doing.
For the record, my aunt was diagnosed with type 1 about 55yrs ago, during her 1st pregnancy. She had 4 children in total and to date has no serious complications, and shes over 70 now.
There are many good websites out there which can help you as a parent. Here is a link you might find useful if you havent got it already

http://www.facebook.com/joslindiabetescenter?ref=nf

http://www.facebook.com/pages/ParentingDiabeticKidscom/169254573122?ref=nf

Glodee
 
Hi Andy,

I was diagnosed as Type 1 when I was 9. I'm now 40 and very much looking forward to the next 40 years.
Diabetes treatment and management has changed remarkably over the last 30 years and I suspect that it will continue to improve.
Whilst there's no denying that diabetes brings the risk of related complications and makes diabetics more susceptible to other health issues, with good control and your support over the coming years, I see no reason why your daughter shouldn't lead a long and healthy life.
I've only been a member of this forum for a few weeks but I've noticed that there are quite a few parents of young diabetics that regularly post and I'm sure a few of them will be along to offer you support.

Keith.
 
Hi Andy, welcome to the forum 🙂 Don't be frightened by the statistics - what you read probably refers to the situation as it used to be long ago. For someone newly-diagnosed who takes good care at managing their diabetes, there's no reason they shouldn't live as long a life as anyone else - and possibly even be healthier than most too in many other ways. It is a serious condition, and therefore needs to be taken seriously, but if it is then, to quote another member 'well-controlled diabetes is the major cause of absolutely nothing' 🙂

You'll get lots of support and advice from the other parents here - and the rest of us, of course!
 
hi and welcome there is a lots of parent on the forum and i dont think anybody wish anything like that and we hope that the future will bring better news to live longer and less stress with this condition
 
Hi Andy, welcome to the forum.
 
Hi Andy ...

Welcome to the forum ... The large extended family ... 🙂

I'm mam to Nathan type 1 diagnosed at 11, 3 years ago ... he's 15 next month.

I think the reference to life expectancy refers to many years ago .. So please try not to let that worry you ..

My best friend has been type1 since 8mths old .. nearly 38 years ago ... she has had no problems, complications and has had 3 bouncing children.

Heidi
xx🙂
 
Hi Andy,

Sorry to hear about your daughter, my son was also 10 when he was diagnosed in November hes doing really well now and his numbers are near on perfect...just as we were getting used to his diabetes we had a double whammy and our 2 year old girl was also diagnosed last month :(

I hope your daughter comes to terms with it ok, this forum is great 🙂 x
 
Hi Andy

Sorry to hear about your daughter's diagnosis. As everyone has said the stats you saw are probably very different now as so much has improved in the last 20 years. The best thing is to keep your daughter's levels as good as possible and that will reduce the likelihood of future complications. But please do keep in mind there is a lot to learn, everyone with Type 1 is different and no one always has 'near perfect' levels all the time. I know several older Type 1's who have had diabetes many many years and are still very healthy.

These stats do come in handy sometimes when you want people to take notice of the diabetes!
 
Hi Andy.
We were talking on another thread earlier today about statistics and how we are all different.
You can live with diabetes and be healthy for a long time but we are all still suceptable to every other ailment known to man.
I think if i hadn't been diagnosed with this condition at 21 years i probably would be less healthy than i am today because it's made me look after my health more. I'm now nearly 46 and still going strong with no major complications to worry about. With medical advances being as good as they are, i expect yours will do even better. Based on those statistics, i only have 9 years left to live!
Best of luck with it all.🙂
 
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Hello and welcome, Andy! I have two children under 7 with type 1, both diagnosed in the last 7 months, and I find the parents' section on here very useful.

I try not to read too many statistics. Bear in mind that a lot of them are based on old information, and there are advances being made every day.

All the best to you and your family. I know how hard the first few weeks are.
 
The reason this statistic is being used is historical. The figures are taken from stats all over the world - including third world countries where children die within a couple of years of diagnosis - due to the fact they cant afford the insulin or their families wont pay for it.😡 I asked this very question at the JDRF meeting i went to and was told that there is no reason at all that my son wont achieve his full life expectancy if he has good control. As we have better technology and insulin pumps - control can be much tighter than it ever was - it just takes a bit more effort!🙂

Welcome to the forum by the way. My son is 11 and was diagnosed 14 months ago and is now on a pump - his hba1c has come down from 9.6 to 7.1 in 6 months.🙂Bev
 
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