American in the UK, help navigating NHS,GP, and pharmacy system

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maggiek925

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Relationship to Diabetes
Type 1
Hello! I moved to London one month ago and have had t1d for going on 14 years. I am having a very tough time getting the timely care I need from a diabetes specialist to keep my CGM/Dexcom. Does anyone have any tips for speeding this along?
 
What are the issues you're having?
 
Hi and welcome. One month is not long to get plugged into the system here. If you are self-funding your D6, this can be bought directly from their webpage and you don't need any referral. Delivery is very quick and their customer service is excellent. Approval for D6 on the NHS takes time and there are specific criteria which you would need to meet - however the Libre system should now be prescribable for T1Ds by a GP, though some are a little slow to realise this. Have you registered at a GP practice? Do you have insulin?
 
Hello! I moved to London one month ago and have had t1d for going on 14 years. I am having a very tough time getting the timely care I need from a diabetes specialist to keep my CGM/Dexcom. Does anyone have any tips for speeding this along?
Doubt you will get it funded so you will have to pay for it yourself. As you are already on the Dexcom ring the company and explain this to them as they can email USA branch to sanction it without the say so of a UK DSN or consultant.

Speeding things up lol that does not happen in the present state of the NHS you can expect a very long wait to see a consultant some people haven't been seen since before the pandemic and most now do not have a face to face either just a waste of time phone call.
 
Doubt you will get it funded so you will have to pay for it yourself.
I'm slightly more optimistic. I've seen people on twitter getting approved (recently, because of the change in guidelines), and I'd have thought chances would be higher if someone's been using it. So I agree it's not a certainty, but it's worth arguing for.
 
I'm slightly more optimistic. I've seen people on twitter getting approved (recently, because of the change in guidelines), and I'd have thought chances would be higher if someone's been using it. So I agree it's not a certainty, but it's worth arguing for.
My consultant wrote to me and said I was entitled to the G6 and he would discuss it in clinic he didn't, he handed me the libre so I dropped it in the bin in front of him and walked out. I've used Dexcom for years and entitled to have it funded but nope it's CCG policy not to fund it yet under the disability act I am clearly entitled to have it funded.
 
Another thread has said that the dexcom that will be funded by the NHS is the Dexcom One not the G6 which is the same sensor but the tech has been limited so some of the benefits aren’t included. The funding approval was expected a couple of months ago but is still dragging on.

It's no good for me as hasn't got the features I use and need.
 
As you are already on the Dexcom ring the company and explain this to them as they can email USA branch to sanction it without the say so of a UK DSN or consultant.

You don’t need the approval of any kind of doctor or consultant to buy a dexcom, you can just buy them online on the dexcom uk website. The dexcom one is cheaper than the G6 but both options are available online. You may be able to get libre prescribed through your GP or that is also available to buy online.
 
You don’t need the approval of any kind of doctor or consultant to buy a dexcom, you can just buy them online on the dexcom uk website. The dexcom one is cheaper than the G6 but both options are available online. You may be able to get libre prescribed through your GP or that is also available to buy online.
I know when I started the Dexcom it was not provided until a letter of confirmation was received from DSN. If it's been changed now all well and good. I had the same issue with moronic when I wanted the sensors to use with my pump I just gave up in the end due to the hassle involved.
 
Are Americans entitled to use the NHS just because they live here or do they have to fund private health insurance?
 
I know when I started the Dexcom it was not provided until a letter of confirmation was received from DSN. If it's been changed now all well and good. I had the same issue with moronic when I wanted the sensors to use with my pump I just gave up in the end due to the hassle involved.
You’ve been able to buy it online for several years. It’s so long ago that I first bought dexcom online that I can’t remember the exact date. Can definitely buy it online currently as I did only a couple of weeks ago. I didn’t have to provide any details of doctors etc.
 
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Are Americans entitled to use the NHS just because they live here or do they have to fund private health insurance?
It’s a residence based healthcare system, so if your ordinary residence is lawfully the UK you can use the NHS free, if you’re just visiting then there’s a charge.

“Ordinarily resident means living in the UK on a lawful and properly settled basis for the time being, and you'll be asked to prove this.”
 
“Ordinarily resident means living in the UK on a lawful and properly settled basis for the time being, and you'll be asked to prove this.”
Thank you Lucy, I had thought it was contributions related. When we were self employed we missed a few contributions and I subsequently had to pay to make them up.
 
My son in law moved here from the US and for some time he was paying to be in the NHS system, which went on until his citizenship was obtained - something which cost quite a bit and there were lots of hoops to go through, offices to travel to and so much paperwork to be sorted out within very strict time limits.
Unlike much of the media's information about people able to come over here and get all the benefits - the truth is somewhat different.
 
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