Advocating for your own Diabetes care can be so exhausting

[Lauren]

I have so many brilliant healthcare professionals in my life, and a particular few who always try to make time for me.

But sometimes, I feel like we are made to feel bad for just existing!
I'm thinking of occasions where I've had to really argue and chase prescription items, only to be made to feel like I'm an annoyance to the person I'm talking to. Or to be told I'm wrong, or made to feel that I'm wasting someone's time (thinking of a DSN I had ten years ago who didn't believe in dawn phenomenon). It can be so draining.
I wish they knew that I'd also rather not be here, arguing about diabetes and supplies, and that needing medication and supplies is not something I can help.

At the moment I am fighting for pump supplies and also having to constantly chase prescriptions. I've read other stories on here where nurses have been dismissive of people needing things like sensors. Or people wanting to learn to carb count to gain better control, only to be told 'no, that's not right for you.'
It's very frustrating and sad.

Not sure what the point of this post is, but if you are also going through this - I understand and I feel for you!

 

[saffron15]

I have so many brilliant healthcare professionals in my life, and a particular few who always try to make time for me.

But sometimes, I feel like we are made to feel bad for just existing!
I'm thinking of occasions where I've had to really argue and chase prescription items, only to be made to feel like I'm an annoyance to the person I'm talking to. Or to be told I'm wrong, or made to feel that I'm wasting someone's time (thinking of a DSN I had ten years ago who didn't believe in dawn phenomenon). It can be so draining.
I wish they knew that I'd also rather not be here, arguing about diabetes and supplies, and that needing medication and supplies is not something I can help.

At the moment I am fighting for pump supplies and also having to constantly chase prescriptions. I've read other stories on here where nurses have been dismissive of people needing things like sensors. Or people wanting to learn to carb count to gain better control, only to be told 'no, that's not right for you.'
It's very frustrating and sad.

Not sure what the point of this post is, but if you are also going through this - I understand and I feel for you!

I'm type 2 not type 1 and felt bereaved when diagnosed last July. This forum was so helpful emotionally and practically. I'm in awe of the pragmatism of type 1s who know managing their diabetes is potentially life threatening.

Your posts have a resilience a d sense of humour I have admired. I have also been thrilled for you that you are going to be a mother of two. We have all had deliveries which have been tiresome but the behaviour of your pump provider is appalling.

I hope you can find someone who can do battle for you allowing you to concentrate on your family and work and finding joy in your pregnancy.

Good luck

 

[Lauren]

I'm type 2 not type 1 and felt bereaved when diagnosed last July. This forum was so helpful emotionally and practically. I'm in awe of the pragmatism of type 1s who know managing their diabetes is potentially life threatening.

Your posts have a resilience a d sense of humour I have admired. I have also been thrilled for you that you are going to be a mother of two. We have all had deliveries which have been tiresome but the behaviour of your pump provider is appalling.

I hope you can find someone who can do battle for you allowing you to concentrate on your family and work and finding joy in your pregnancy.

Good luck

You're so kind! Thank you for your kind words. I also hope I find someone like that!

 

[Wendal]

I have so many brilliant healthcare professionals in my life, and a particular few who always try to make time for me.

But sometimes, I feel like we are made to feel bad for just existing!
I'm thinking of occasions where I've had to really argue and chase prescription items, only to be made to feel like I'm an annoyance to the person I'm talking to. Or to be told I'm wrong, or made to feel that I'm wasting someone's time (thinking of a DSN I had ten years ago who didn't believe in dawn phenomenon). It can be so draining.
I wish they knew that I'd also rather not be here, arguing about diabetes and supplies, and that needing medication and supplies is not something I can help.

At the moment I am fighting for pump supplies and also having to constantly chase prescriptions. I've read other stories on here where nurses have been dismissive of people needing things like sensors. Or people wanting to learn to carb count to gain better control, only to be told 'no, that's not right for you.'
It's very frustrating and sad.

Not sure what the point of this post is, but if you are also going through this - I understand and I feel for you!

Hi Lauren,
I do feel for your situation and probably not the best person to respond as generally I manage fine without much external support which is there if I require it.
However I think what you highlight is reflective of a lot of areas of society where the people we approach for help lack the empathy or willingness to help due to pressure of work,lack of resources or simply they do not possess the skills or attitude to help.
When you do find someone who really does care and tries to resolve anyones individual issue we celebrate it as it is unexpected but at one time people did have the time, wish and resources to help but suspect those days are long gone.
Really hope you get some resolution of any issues or challenges you are facing.Take care.

 

[everydayupsanddowns]

It really can be @Lauren

Sorry to hear you’ve been having a bit of a kerfuffle getting things sorted.