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Advice please...

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Sharron1

Well-Known Member
Relationship to Diabetes
Type 2
Hope everyone is ok. I have a bit of a problem which I have mentioned before but it has appeared to have grown legs. I will repeat the story. Apologies to those who have already know the details. My original T2 diagnosis was odd. I decided to get my sugar tested at a chemist, both my parents were late onset Diabetic but I didn't have any of the usual symptoms I just wanted to get it checked. The finger prick result was non diabetic. The pharmacist said I needed a proper blood test .The GP wouldn't give me one as in her words, 'You can't have one because you aren't diabetic' I persisted, and she told me I could have it done privately. I did (July 2018), they first lost my result and then amazingly found it... which returned 74. Metformin x4. I kept a food diary immediately and in Aug 2018 one finger prick result pre diabetic (entry note I did it too soon). Since then every test non diabetic. Hba1c all good. The DN was interested in my diabetes as I didn't present as diabetic. I told this story to her , who must have told the GP. The GP rang me and said it sounds as if there has been some sort of error. She is considering removing me from the diabetes register. I am not happy about this as I think I will never really know if I am or not and I need all the annual checks just in case. i just get on with life and eat low carb. We left it for.the moment. Does anyone have any suggestions how I should ' manage' this, other than say 'No'? Apologies for the length of the post
 
I have to say, I would be very suspicious of a diagnosis based on a single test result that went missing and then turned up later with a significantly positive result.... to me the test should have been repeated free of charge to confirm, since there was obviously some mishandling of the process.... I would also have less confidence in a private test result than an NHS one. The fact that a finger prick didn't pick up a problem and you haven't been symptomatic also lends itself to the private test result not being valid but also doesn't rule it out.
I would negotiate a repeat HbA1c reading with your GP to clarify the situation. I appreciate you want to retain access to the diabetes complications testing like retinal screening but if your HbA1c result is normal then you are no more at risk of them than anyone else and since you are able to monitor your own BG levels, you should have a heads up if anything suddenly changes with your BG levels and you need another HbA1c test to clarify if you have crossed the diabetes threshold.
 
Thanks for the speedy response. You are absolutely correct, I should have requested a repeat test. But at the same time I was in the middle of a mis diagnosed torn ligament, couldn't sit couldn't stand and in great pain I really didn't know if I was coming or going. The torn ligament was sorted out privately. I was a little surprised at receiving the call from the GP. I hadn't really thought of how I could manage it, but doing the finger pricks should give me an idea of the general direction. I suspect she will remove my name. Thank you
 
Hi @Sharron1, I didn't know your back story about diagnosis...what a faff! I didn't realise that GPs didn't test on request...you should come to my GP surgery: you get a blood test if you so much as sneeze!

I think @rebrascora has hit the nail on the head, to try and get your GP to agree to doing another definitive test rather than just removing you from the register immediately. Best of luck with it.
 
Thank you. Tbh I am more annoyed at myself, I am usually on the ball but I was in so much pain with my knee and obviously out of my comfort zone I let the surgery take charge. I was also unused to seeing drs. I trusted them. Believe me now I am back to my usual self, and more aware of how the system works (or doesn't) I question everything, never rude but assertive
 
It's in the NHS's interest to do an HBA1c, even though Metformin tablets are cheap, because if you do not have diabetes, they can stop doing regular reviews and checks for neuropathy and retinopathy - which all cost the NHS money!
 
Hope you manage to get an HbA1c arranged to put your mind at rest and confirm things for you @Sharron1
 
trophywench said:
It's in the NHS's interest to do an HBA1c, even though Metformin tablets are cheap, because if you do not have diabetes, they can stop doing regular reviews and checks for neuropathy and retinopathy - which all cost the NHS money!
Click to expand...
I agree and I think the annual checks are v important.
 
The time for a repeat test is surely long gone? A short(ish) time after the 74 result would have been helpful, but that was over 2 years ago, and since then you have had 3 perfectly normal non-D results.
 
silentsquirrel said:
The time for a repeat test is surely long gone? A short(ish) time after the 74 result would have been helpful, but that was over 2 years ago, and since then you have had 3 perfectly normal non-D results.
Click to expand...
Thank you. I think the suggestion was to request an earlier Hba1c and then 'negotiate' with my GP for me to remain on the register. I suspect getting me off the register is more about saving pennines.
 
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