A question for people with neuropathy

[Lilian]

I wonder if you could please tell me how it is for you? Is it constant or do you have many days/weeks of no pain at all? One day I might get sharp shooting pains in any part of my body. Sometimes it will be just one, similar to an electric shock for a split second. Sometimes I will have shooting pains in the same place constantly for 24 hours. Or another day I will get a shooting pain in my toe, later it will be in my arm, and later it will be in my leg. Next day nothng and maybe nothing for days and weeks. Would that be how diabetic neuropothy is?

 

[barrym]

No pain for me just numbness.

 

[Ljc]

When mine started , two toes on my right foot went numb, without any pain. All was fine for many years, then I started to get shooting pains in parts of my legs and toes. Now have no pain but numb feet.

I used to get shooting pains in one area fro about two days then it would go only to return a few weeks later.

 

[Vonny]

I don't have neuropathy but my partner does, though his is non-diabetic. His feet are constantly burning, even when they are cold to the touch. He wears flip-flops even at this time of year and can't bear any socks or shoes on his feet. I think neuropathy takes a number of different forms.

 

[pm133]

I wonder if you could please tell me how it is for you? Is it constant or do you have many days/weeks of no pain at all? One day I might get sharp shooting pains in any part of my body. Sometimes it will be just one, similar to an electric shock for a split second. Sometimes I will have shooting pains in the same place constantly for 24 hours. Or another day I will get a shooting pain in my toe, later it will be in my arm, and later it will be in my leg. Next day nothng and maybe nothing for days and weeks. Would that be how diabetic neuropothy is?

I get numbness and tenderness on my toes. My feet feel like they are on fire and this spreads up my legs as high as my abdomen.
The numbness is always there but the pain comes and goes. Sometimes I will wake up with no pain at all for a whole day. It usually comes on when I put my feet up at night but can also come on 2 hours after a meal when I am spiking. A good walk definitely helps as does plunging my feet into a basin of cold water for a couple of minutes.
It stops me sleeping at night but in the morning I am usually able to catch up. Still trying to get painkillers which actually work with it.
I do get the odd bit of cramp and shooting pains as well but they are temporary fortunately.

 

[Pumper_Sue]

I wonder if you could please tell me how it is for you? Is it constant or do you have many days/weeks of no pain at all? One day I might get sharp shooting pains in any part of my body. Sometimes it will be just one, similar to an electric shock for a split second. Sometimes I will have shooting pains in the same place constantly for 24 hours. Or another day I will get a shooting pain in my toe, later it will be in my arm, and later it will be in my leg. Next day nothng and maybe nothing for days and weeks. Would that be how diabetic neuropothy is?

Hi Lillian,
what you are describing does not sound like diabetic neuropathy. As I understand it diabetic neuropathy normally affects both limbs and is constant.

I have numb patches here there and everywhere that come and go which was diagnosed as part of my MS.
So make a phone call for some bloods to be done as it could be something very simple like a B12 deficiency.

 

[pm133]

Hi Lillian,
what you are describing does not sound like diabetic neuropathy. As I understand it diabetic neuropathy normally affects both limbs and is constant.

The NHS website says that it is usually constant but can come and go as well which is what I think is happening with me.

 

[Lilian]

Hi Lillian,
what you are describing does not sound like diabetic neuropathy. As I understand it diabetic neuropathy normally affects both limbs and is constant.

I have numb patches here there and everywhere that come and go which was diagnosed as part of my MS.
So make a phone call for some bloods to be done as it could be something very simple like a B12 deficiency.

That is what I was wondering @Pumper_Sue but not knowing what diabetic neuropathy was like I cannot argue with my doctor when she is just presuming it is that. She did not even ask for the symptoms. Mine is more like a neuralgia pain, but can be anywhere on my body

 

[everydayupsanddowns]

Some members of the forum over the years have associated flare-ups of increased peripheral neuropathic pain with elevated or erratic BGs.

 

[Flower]

The pain I get from neuropathy is constant, it fluctuates in intensity but it doesn't go away. I'm always aware of the pain and discomfort in my feet and toes.