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A proper intro - too shocked at first

Inka

Well-Known Member
Relationship to Diabetes
Type 1
Yes, I agree @rebrascora but it’s pointless to do it now, as you say. If there’s any chance of Type 1/1.5 I always think it’s best to eat normally (ie not low carb) else it just drags things on. If @Jenny105 is tested for ketones and doesn’t have them, then that could be used as ‘proof’ she’s not 1.5. It seems half-hearted and a waste of time really.
 

rebrascora

Well-Known Member
Relationship to Diabetes
Type 1
Yes, I agree @rebrascora but it’s pointless to do it now, as you say. If there’s any chance of Type 1/1.5 I always think it’s best to eat normally (ie not low carb) else it just drags things on. If @Jenny105 is tested for ketones and doesn’t have them, then that could be used as ‘proof’ she’s not 1.5. It seems half-hearted and a waste of time really.
I totally agree.
 

Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Ketones are what your body produces when you are burning a lot of fat for energy, They can be dietary, ie, caused by a low carb diet, or when you are needing extra energy so your body is raiding your fat stores, or they can be as a result of high blood sugars, which are the 'nasty' ones, as if they are very high, they can be a sign that the body is entering a state of Diabetic Ketoacidosis. There are two methods of testing for them, a urine dipstick test, or a blood fingerprick (my blood glucose meter also takes ketone strips). The urine strips are cheaper, but a rather crude way of testing, as you compare the colour against a chart, so the answer you get is rather 'ball-park'.
I can’t think why your nurse is doing one particularly, if she was worried about ketones, she should have summoned you for a finger prick test immediately. As she hasn’t, she can’t be that worried.
@Robin This is useful. The urine sample request came from another doc, my own may be on hols. There should have been a test done in August but results were never filed. Communication has been via telephone bar one.

My past 3 weeks BG readings failed to send . The Engage consult service wont take Open Office files. My readings have dropped from 14 down to around 7. Sometimes a little less, sometimes a little more. Today I copied over those readings for the past 3 weeks, mainly 6-8 , lowest 5.4 + 2 @ 10.9 ( both of these whilst away, with 10 days gap. )

The raiding of fat stores rings a bell. When all this began in July I wa @ 9 st 7lbs. I now weigh 8.4 max. Ive been doing low carbs , but increasing the fats I haven't had for years. Cheeses inc brie, wendsleydale, stilton; bacon,butter,etc .Maybe that is a factor. Note I walk a large dog each day 1 hour off lead, involving hills, beach/sea, fields, jogs & ball games, plus a swim twice a week. So Im burning off everyday
Next week Im doing a discovery sheet for the nurse. Readings everyday for each meal etc. Im hoping that will reveal some interesting issues
 

Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
The latest in the ketones saga. Apparently a doctor, who is not MY doctor ,ordered the urine test.
There's confusion as reports/ messages go via the Engage Consult IT system. Both ways.Im not sure who's receiving what
I did the sample this am. Doc says it was because my readings were high . (He hadn't received the last 20 days ...... readings 5.4 - 9.2 with occaisonal 10 or 11.) as opposed to 12 - 18 in the first few weeks.
Then Nurse says its because of weight loss of 1stone 12 lbs in 4m. Nurse says the ketones maybe feeding off my fat ( I think?). My weight has flattened out @ 8. 2 in the past week. Telephone expected if the ketones are in the wrong and may need insulin. Not looking forward to that.
 

Inka

Well-Known Member
Relationship to Diabetes
Type 1
Don’t be afraid of insulin @Jenny105 The important thing is to get the right diagnosis and the right treatment. I hope all goes well for you with the ketones.
 

Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Don’t be afraid of insulin @Jenny105 The important thing is to get the right diagnosis and the right treatment. I hope all goes well for you with the ketones.
No telelphone call ! Don't know what that means . '' Nothing to report '' Or maybe ''overlooked ''. We'll see what Monday brings.
Thanks for your encouragements.
PS just found that the urine tests are listed - 6 i think on Patient Access. The first 4 have negative against title BUT N/A is listed on the inside...... maybe there not signed off or are kept private
 
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Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Don’t be afraid of insulin @Jenny105 The important thing is to get the right diagnosis and the right treatment. I hope all goes well for you with the ketones.
@Inka Hi, Insulin prob not a prob. Wish I knew my type; who to refer to; I need to speak via landline not mobile which is poor quality for me to find out WHAT to eat.
I'm sending a timeline re my weight from 1971 to date via GP. 25 yrs were spent trying to lose weight-I managed over 1st. Latterly I was eating less and less of everything,but inadvertently raised lockdown sugars. Now Idont know WHAT TO eat?
I hope the urine tests establish something after almighty weight loss of over st 11/2 st in 4m, most prior to BG test ). BMI is fine but how do i keep it there ,AND What CAN I EAT. ??? o_O ;) :p
 
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rebrascora

Well-Known Member
Relationship to Diabetes
Type 1
I would eat sensibly, but not particularly low carb as I think that is clouding the issue with your diagnosis.

Keep a food diary. Don't eat cakes, biscuits, crisps and sweets but eat wholesome healthy meals as much as possible. If your BG levels go up then hopefully that will help them to identify your diabetes type more easily.
So.... perhaps have porridge for breakfast if you like it with a handful of berries.... most NHS staff recommend porridge even though many Type 2s can't cope with it.... or have a couple of slices of wholemeal toast with a scrape of marmite or peanut butter but maybe not jam or marmalade.
Have a sandwich and soup at lunchtime and meat or fish or eggs and a small portion of potatoes and veg. Keep a record of the amounts of carb rich foods.... so weigh your porridge oats and make a note of how many pieces of potato etc. This is the sort of advice an NHS dietician would give to a diabetic. I might not personally agree with it but if you do that then they will have a better chance of understanding what is going on with your metabolism and hopefully end the confusion.
 

Inka

Well-Known Member
Relationship to Diabetes
Type 1
@Jenny105 I answered the ‘what to eat’ question at least twice, as did others. Feel free to ignore us but, again, as @rebrascora says, if you reduce your carbs too much and you actually are LADA then you’ll mask the problem and delay the correct diagnosis.

Eat normally! Avoid sugar but just eat normal meals with a reasonable amount of carbs.
 

Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
@Jenny105 I answered the ‘what to eat’ question at least twice, as did others. Feel free to ignore us but, again, as @rebrascora says, if you reduce your carbs too much and you actually are LADA then you’ll mask the problem and delay the correct diagnosis.

Eat normally! Avoid sugar but just eat normal meals with a reasonable amount of carbs.'
Apologies for being a nuisance. I'm confused by advice given by the NHS & the extra tests being given. Im supposed to be doing a discovery sheet this week so I'll conquer my old food fears and add in things I haven't eaten recently.
I eat midday main meal and evening is usually a salad with bread. Maybe I'll add in a soup which isn't too sugary.
I'll back off a bit
 

Inka

Well-Known Member
Relationship to Diabetes
Type 1
Apologies for being a nuisance. I'm confused by advice given by the NHS & the extra tests being given. Im supposed to be doing a discovery sheet this week so I'll conquer my old food fears and add in things I haven't eaten recently.
I eat midday main meal and evening is usually a salad with bread. Maybe I'll add in a soup which isn't too sugary.
I'll back off a bit

You’re never a nuisance @Jenny105 :) I completely understand how frustrating and confusing it must be to not have a definite diagnosis of type. I was just reminding you that the advice remains the same really if LADA is a possibility.

I was also stressing that the ultimate choice is yours:) Weigh up what everyone here has said and do what you feel is right for you and what you’re able to do within your particular circumstances. You’ve mentioned food fears before so that might be an additional thing you need to add in to your mental calculations before deciding what’s best.

Hopefully you’ll get more clarity about your diabetes type and that will help a lot. X
 

Jenny105

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
Yes, I agree @rebrascora but it’s pointless to do it now, as you say. If there’s any chance of Type 1/1.5 I always think it’s best to eat normally (ie not low carb) else it just drags things on. If @Jenny105 is tested for ketones and doesn’t have them, then that could be used as ‘proof’ she’s not 1.5. It seems half-hearted and a waste of time really.
 
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