A newly dignosed Type 1.5 (lada)

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numbnuts

numbnuts

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Type 1.5 LADA
Hi all

I posted a while ago diagnosed as type 2. After having private tests it now looks like iam a 1.5. C-pep is below normal and Gad is High . I lost a massive amount of weight prior to my Type 2 diagnosis in October 2009 . The NHS diabetic nurse was all ready to refer me for these tests months ago only to find that the specialist - in his words ' would just keep an eye out and the diabetic nurse will monitor me for any changes ' Thats nice. Anyway - i went private - had the tests , JOB DONE. So iam newly mis-diagnosed and will start insullin on Monday. Iam relieved but very angry bieng misdiagnosed. Spent hundreds of pounds on test strips - monitering myself and making sure my A1c has been in the 5's (last one was 5.3) Ive done the monitering - not the NHS. Iam a socialist at heart but believe me - if you are unsure what diabetic type you are, pay privatley. Countless times i said to the diabetic nurse that my BG rises when i excercise - that i cannot eat more than 4g of carbs at a meal. That iam living on Protien, that metformin is doing nothing for me etc etc . Anyway its sorted now - i just need to calm down. I started losing weight slowly at first - this was 6 months ago but i was still eating normally. Then it was rapid weight loss - thirst and urination so thats when i initially went to the doctor back in september. I would say this though - I was fat, and i was doing alot of hours at work. you can be fat and still have autoimmunity so people of all sizes get LADA.
 
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Hi Numbnuts,
You could be writing my story! Glad you are getting things sorted at last. Its funny how when your over a certain age (ie about 6!) that some drs just stick a type 2 label on and expect that to do the job!
I think you will find things much better on insulin. I certainly have more flexibility about when and where I eat and the amount I can tolerate (gone up hugely from the metformin days). I have also started to regain the weight I needed to, which is a great relief as I hated being so thin.
Anyways do let us know how you get on with the insulin, I'll be looking forward to hearing all about it.
Glodee
 
hi there, thanks for your reply, what you say sounds very promising, i just hope i can eat a 30g carb meal. Is that possible? i can eat maximum of 4g of carbs with onr meal at the moment . Anyway hopefully panic over now, just have to figure out insulin dosages per meal and learn to carb count.

Really good news to hear from a fellow LADA, i hope we can support each other. i will definatley let you know how i get on with insulin injections.
 
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numbnuts said:
hi there, thanks for your reply, what you say sounds very promising, i just hope i can eat a 30g carb meal. Is that possible? i can eat maximum of 4g of carbs with onr meal at the moment . Anyway hopefully panic over now, just have to figure out insulin dosages per meal and learn to carb count.

Really good news to hear from a fellow LADA, i hope we can support each other. i will definatley let you know how i get on with insulin injections.
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When you start taking insulin - you will be able to eat a lot more carbs than you have been eating. You do have to learn to carb count and match the insulin to the food - but you certainly will be able to eat more than 30carbs per meal if you want to.🙂Bev
 
Numbnuts,
Like you I could barely tolerate carbs while on tablets, and ate just 2 meals a day - at a stretch! Thats without snacks and minimal carbs. I have been able to eat more or less normally since starting insulin. ATM I'm eating more carbs and bigger portions as I'm trying to gain weight, but I can rapidly see the time coming when I will need to curb my carb intake when I have reached a normal BMI. I think you will find you will feel much better on insulin.
Glodee
 
Yes my carb intake has been very minimal, ha - really pretty non existant. i would like to eat a balanced meal if that is possible or failing that - actually cook vegatables! as i have eaten a extreme raw veg and seeds diet. I wanted to ask you if you ever experienced blood sugar lows? or frequent loss of concentration. It seems my own insulin works for a while then iam feeling confused and giddy. It all feels very up and down with my BG at the moment, I can actually feel the lows alot . but hopefully things will improve soon.
 
That's interesting.
I'm wondering myself if i might be LADA rather than type two, the bs have gone up a bit of late. However the NHS doesn't pay me enough not to have to rely on their facilites. I could just be imagining it, i'll keep testing and seeing what happens.
 
lada

hi - not sure when you were diagnosed, but usually lada has a few things in common with type 1 symptoms. I think the main symptom is rapid weight loss - which happened to me right before i went the doctors.
 
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