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A little frustrated!!

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xLaurax

New Member
Hi guys, I'm new to this site and was wondering if any one has ever had he same problems as me...

I have had type 1 diabetes since I was 4 years old and I am now 28. I've been very lucky in that I have never had any major problems, no hospital admissions and generally really good control.
Recently my HBA1C have been really high, and I've simply lost control of my blood sugars! I'm either really low or really high and just can't get the balance. I've changed my insulin type, changed doses and literally tried everything! Nothing seems to be working.

When talking to my diabetes team, we think the problem is my insulin absorption - so I've been referred for the insulin pump!

Although I have never been too keen on having the pump, I do feel this would enable me to have better control, which is obviously what I want!

I've been waiting to hear about my referral for the pump for a long time now and all I seem to be getting told is that "we haven't been able to contact the person we need to" etc etc, but try changing this dose, try changing that dose.

I just getting a little frustrated as I've tried everything and I am still trying everything, and I'm still no closer to the solution.

Has anyone else had a similar problem or is anyone on the insulin pump and could give me a little more information?

Thanks so much
Laura x
 
Welcome to the forum, Laura. Sounds very frustrating! There are lots of great people on here who will be able to give you pump advice and others who have negotiated hard to get the service they needed.
 
What info do you want LOL - I too have an absorption problem and I still do on the pump - getting any sort of insulin into you, by either injection or pump, involves doing it via your skin - or rather the area immediately under your epidermis. However you might be able to bung a cannula in somewhere were you don't usually jag and therefore haven't damaged. With me, this is my bum. Because you only change the cannula every few days so that's one hole every 2 or 3 days instead of 5 a day every day, you should cause less damage in future than you do at present on MDI.

After resting my tum for over 12 months, I can now insert a cannula right at the sides every couple of weeks and get good absorption, so that bit of me either didn't suffer or didn't suffer as much. However, one bit of my left bum cheek despite being entirely virgin as far as jabs were concerned, doesn't absorb well and just never has. Flippin nuisance but there you go. I would literally be lost without my husband since he has to put most of them in for me and I hate being reliant on him, in order to stay alive. I mean I don't think he's going to murder me by not doing it properly or anything, I trust him implicitly but handing that responsibility over to someone - anyone! - else at this stage is just alien.

Now - when was the last time if ever you tested you current basal insulin dose to see if it's keeping you steady? It does help when adjusting doses both on MDI and pumping - and in any case you absolutely HAVE to do it with a pump, so you may as well have a go at it before you get one, and get used to doing it ready! see http://www.diabetes-support.org.uk/info/?page_id=120 - scroll down the page for the method.
 
Hi, thanks for your reply! Yes, I've been altering not only my bolus but my basal insulin too - have tried many different types and I'm now on a new type: tresiba - have altered times I do it and dose and things still aren't settling. Because I'm doing so many injections a day, my insulin sites are becoming lumpy and therefore not absorbing properly - leading to sudden hypos and then hypers other times!

I think the pump is my only
Other option to try now, but I am abit apprehensive, having been on injections for 24 years it's such a big change

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Welcome to the forum Laura. Not on the pump myself buts lots on here are. Like you, I'm used to injections and was wary of changing but almost all the feedback from people who are on them is they're very good and most have achieved better control using them. I asked at my last review to be considered for one and am waiting to hear. Good luck.
 
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