24year old Newbie Type 1

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CBee

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Relationship to Diabetes
Type 1
Hello all,

I was diagnosed on the 17th February and whilst I scrolled through the forum and read many of your stories and supportive messages, only now feel confident enough to post my own message - maybe partly a way of coping.

Like many diagnosed people,I never in my life expected to be diagnosed with diabetes. In fact, to be honest, I didn't even understand what it really was (I'm ashamed to say), just that type 2 ran in my dads family and my uncle had it.
I had all the classic symptoms, literally head to toe, starting with my long vision going fuzzy. A confused nurse and trip to east Surrey eye clinic where I got told to see my opticians was the start. I went to my doctor and said I was having trouble catching my breath and mentioned my eyes but got told it was psychological and to go to my opticians.
?300 worth of glasses later and I was a happy bunny - so I thought. What's a pair of glasses compared to your pancreas packing up lol.
2 weeks later I could not stop drinking. A pint before bed, waking in the night to decide whether to use the loo first or drink more, which is the weirdest position to be in.

It took my dad nagging me for me to take a trip down to open surgery.
I explained about my drinking and that my dad wanted me to have a blood test. Whilst the student nurse nodded and took notes, seeing her face change when I mentioned my recent eye change was probably the first moment I thought things may not be so simple. Finger prick and urine tests confirmed I was 29.5 and 4+ ketones (like I knew what that meant) "Is that high?" I asked the nurse. She told me the dr would want to see me and to prepare myself to go to hospital - excuse me?? Hospital?? She then blurted that I was more than likely diabetic - I still didn't even know what that meant!! Long long story short (we all know how this ends) 1 hospital trip later (and an uninformed panicked pharmacist calling at 10pm that evening telling me my blood test was 36.8 and to go to hospital ha!) bish bash bosh, diabetic.

I guess the reason why I'm posting now is that I really feel like I need to build up a support network. I have no friends who are diabetic and whilst my close friends, family and boyfriend have been faultlessly, amazingly fantastic, I need to talk to someone who knows what 2 hypos in a day feels like and the anger and frustration that though I've lead a healthy life, doing everything right, I can no longer plough through a bag of malteasers without doing some mental calculation and blood test.

Thanks for a space to blurt this out.
C 🙂
 
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Hi CBee, welcome to the forum 🙂 Sorry to hear about your diagnosis, in particular because it wasn't tested for when you were showing some classic symptoms. Shame you had to spend so much on glasses that I'm guessing you no longer need? And a shame that the doctor did not put two and two together and just sniff for ketones when you mentioned the eyesight and shortness of breath :(

Glad you decided to post - you now 'know' lots of people with diabetes, some like yours, some different, but all very friendly with lots of experience, so please ask anything that may be troubling you 🙂

Not sure where you are based, but there are several 'Circle D' groups up and down the country that have very good social outings where you can get to meet other people your age with diabetes - you can find more details at

http://www.circledrocks.co.uk/

You would also be welcome to come along to any of our forum meets - it can make a real difference just being able to sit and chat with others who 'get it' 🙂

Have a look in the Useful links thread for some good sources of information. What insulin regime are you on, and have you been invited to attend any diabetes courses?
 
Hi CBee. Welcome 🙂

You're not the first person to find it all confusing and slightly overwhelming.

I hadn't really properly 'met' another T1 until joining the forum a couple of years ago. After 30 years.🙄

It sounds like you're aproaching it the right way though. Information gathering is one of the keys to knowing what methods work. Structured testing and recording all your carbs and insulin doses is a part of this.🙂

Rob
 
Hi CBee, welcome to the forum.

It really is a huge benefit I found, to "chat" with others in a similar situation, and somewhere to go for help with all those questions that we get, and often forget to ask the professionals.
 
Welcome to the forum C 🙂

You've definately come to the right place! What insulins are you on at the moment? xx
 
Hi

I was diagnosed in my 20s too and although I didn't go through what you went through (it s diagnosed really quickly whilst I was in hospital with another illness whihc probably caused the diabetes) when you have managed to get to that age perfectly well and then find out you have got diabetes and that it won't ever go away.

I too didn't know anyone with type 1 and only by 80-odd year old Grandad with type 2 and he was clueless to say that least!

It is easy to think you know nobody, but the health professionals can be a real help. There are courses you can go on (like Dafne) which, for me, was fantastic and you feel so much more knowledgeable and powerful about it all after that. I think the more you know the better and people on this forum know ALOT! You can't know everything without experience and time but I think it makes you feel so much better mentally to have some knowledge of what it is you have.

It is hard work but worth it.

Family and friends will be invaluable but it can be frustrating that they can't understand what you are going through and sometimes they get to know a little bit and then drive you mad!!

You sound quite matter fo fact and really switched on so hopefully you will soon have your head around at least some of it. You are really newly diagnosed but with time it feels much less scary and overwhelming.

Make sure you get as much support from the health professionals as you possibly can. In my experience those who specialise in diabetes are great.

Good luck 🙂
 
Welcome to the forum CBee 🙂
 
Hey C..............

Sorry to hear about your diagnosis, however its good that you have finally stepped out and started to talk about your feelings.....

I look forward to hearing more from you............

Welcome to the club..........:D
 
Thank you so much for all your responses, i never expected to get so many and so soon!
I'm on novarapid and lantus but my pancreas is currently in swan song, so I'm doing my usual lantus once a day and injecting novarapid with evening meals and lunch if i'm hyper before eating.

I've been seeing a councellor who has been great just to open up to as i think, though it is totally out of character for me, there is a lot of frustration and anger and probably a good dose of confusion too. I said from the day i was diagnosed that i wasn't going to feel sorry for myself and that it wasn't going to stop me, which i'm slowly learning it won't. I suppose the frustration comes out with people telling i'll be fine or throw in their own 2 pence, people who have no clue about diabetes and that annoys me because how can they possibly know?!

C xx
 
Hiya!

and don't forget the Food Police! - Are you sure you should be eating that wisp of straw? - My auntie's cousin's brother's sister's mother in law had diabetes - and her leg dropped off from eating that!

You do actually find ways of dealing with stuff. Like if you've decided just this once, it's worth an extra jab for a mid-afternoon carb-fest cake - and someone says 'Should you be eating that? you are diabetic' just remember, it's equally upsetting for them for you to say 'Should you be eating that? - you're fat'. But don't say it. Don't sink to their level.

Just smirk, not smoulder! I have a degree in smirking, me.
 
Hi CBee

Another welcome to the forum.

I was diagnosed in my early twenties (and in February) too! That was some time ago now though :D

Fire away with any questions/rants/confusion - chances are someone around here will have been there before you 🙂
 
Think I was February too, so my mum says anyway............🙂
 
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