Thank you for your reply he is 22months old he has been put on novarapid 3x a day and levemer at night I was up with him until 4am this morning his night time bloods spiked to 21.8 I'm so scared for him, we got diagnosed on Monday I took him the doctors because he was have really full overflowing nappies at night uncontrollable thirst but on Monday he was vomiting etc so rushed him to the doctors they did bloods they was at 28.1 he was in ketoacidosis he was limb eyes rolling I was awful I'm fumbling around because I think everything I do is wrong I have to go back to work Monday an all the care will be upto my husband I'm dreading it! My brother was diagnoised as T1 at 12year old he's now 50yrs old but my boy is a tiny baby he's a trooper tho if you say come on mate let do your bloods he grabs his machine an let us do it same with insulin he gets his pen an say mine mine I've 2other children 3,2years I'm feel like I'm drowning right in tiredness,information,anxiety I've found myself so anxious now about what I give him to eat etc sorry for the rant but I have no one to talk to about this
Sorry, of course you had told me how old he was in the title!
🙄 Don't worry too much at the moment if his levels are a bit on the high side, it will take a period of adjustment whilst you and his team find the appropriate doses on insulin to bring them down to better levels. It's actually better that they don't fall too quickly. He's on a good insulin regime, and one that you will learn to adjust as time goes on, but your don'ty need to concern yourself about that right now. Has your husband been helping you so far? The main thing to watch out for is if his levels fall low ( a 'hypo'), in which case you will need to give hime something sugary to raise them - has this been explained to you? Does he have something that he will happily drink, like apple juice, or sweets that are easy to eat, like jelly babies? Do allow yourself a break and let your husband take the strain whilst you get some rest
🙂 Children are remarkably resilient, as I'm sure you have found with your others - it's good that he doesn't mind the blood tests and injections, brave lad!
🙂 Just follow the advice you have been given from his team about food, or feed him normally for now. People with Type 1 can eat pretty much the same as everyone else as long as they have the insulin doses correct, and this is what the team will currently be looking to establish. He's a growing child and will use a lot of energy
🙂 What sort of things does he like to eat? Anything you are not sure of, just let us know and we can reassure you
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If you are on Facebook there is a very good group of UK parents (some of whom are, or have been, members here) - they can be found at
Parents of Children With Type 1 Diabetes In The UK. Hopefully your brother will also be able to help out and reassure you
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Keep letting us know if there is anything, but do please take a little while to have some 'you' time - if you can't sleep, perhaps just go for a little walk. It's horrible, but perfectly normal to feel like you do after such a shock, but it WILL get better, I promise
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Perfectly understandable that your mind is in turmoil at the moment, with so much to take in.Things will get easier, but for now try to take in what you can and anything that confuses or worries you, please ask and we will do our best to help 🙂
