Hi all - hope you are all keeping safe and occupied during this crazy time in our lives.
As stated I'm the dad of a 9yr old with T1 - been ahuge learning curve and still learning to deal with the frustrations of thinking you've got a handle on the daily ups n downs. At the start of this journey some-one said something about nailing jelly to a wall.. Very appropriate!
Daughter is now on the Dexcom G6 and self funded ( ouch!) but its an amazing bit of kit when it works and doesn't report no data in the middle of the night when she rolls over and lies on it. the science behind all this is incredible and I had no knowledge of diabetees when she was diagnosed. She is also on the Omnipod which we are well pleased with as well
Hats off to anyone who has it or ,like me, is a parent trying their darned best to keep that blood sugar level as steady as possible.
Amazed how much trouble we had with the school when it was first diagnosed, Basically an attitude of ignorance and not treating it seriously enough. We've since sold up and moved to a new place and a school who really get it, due to a TA having someone in her family with it. She gives us huge confidence as does the medical team looking after her.
In the early days we all really suffered from info overload and burnout from talking about it constantly, it ended up putting huge strain on relationships within the home as the level of expectation and constant need to get things right, took its toll. one year in we are still learning and battling but feel in a much better place. Hence why I thought I'd join this community and see if I can help or learn from others.
As stated I'm the dad of a 9yr old with T1 - been ahuge learning curve and still learning to deal with the frustrations of thinking you've got a handle on the daily ups n downs. At the start of this journey some-one said something about nailing jelly to a wall.. Very appropriate!
Daughter is now on the Dexcom G6 and self funded ( ouch!) but its an amazing bit of kit when it works and doesn't report no data in the middle of the night when she rolls over and lies on it. the science behind all this is incredible and I had no knowledge of diabetees when she was diagnosed. She is also on the Omnipod which we are well pleased with as well
Hats off to anyone who has it or ,like me, is a parent trying their darned best to keep that blood sugar level as steady as possible.
Amazed how much trouble we had with the school when it was first diagnosed, Basically an attitude of ignorance and not treating it seriously enough. We've since sold up and moved to a new place and a school who really get it, due to a TA having someone in her family with it. She gives us huge confidence as does the medical team looking after her.
In the early days we all really suffered from info overload and burnout from talking about it constantly, it ended up putting huge strain on relationships within the home as the level of expectation and constant need to get things right, took its toll. one year in we are still learning and battling but feel in a much better place. Hence why I thought I'd join this community and see if I can help or learn from others.
