1 in 4 don’t receive sufficient information on diagnosis

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Amity Island

Amity Island

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One in four people with diabetes don’t receive sufficient information on diagnosis, new research has revealed.

www.independentnurse.co.uk

New report reveals lack of diabetes education - Independent Nurse

The International Diabetes Federation (IDF) has released research showing that people living with diabetes don’t have sufficient access to education and information about their condition to support their care.
www.independentnurse.co.uk www.independentnurse.co.uk
 
Amity Island said:
One in four people with diabetes don’t receive sufficient information on diagnosis, new research has revealed.

www.independentnurse.co.uk

New report reveals lack of diabetes education - Independent Nurse

The International Diabetes Federation (IDF) has released research showing that people living with diabetes don’t have sufficient access to education and information about their condition to support their care.
www.independentnurse.co.uk www.independentnurse.co.uk
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Surprised it is not more than 1 in four.
 
I got no information, all mine was from this site
 
Jenny65 said:
I got no information, all mine was from this site
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I was told to come back in 3 months for another blood test, and wasn't even given any literature. Like you, all the info was from this site.
 
DianeS said:
I was told to come back in 3 months for another blood test, and wasn't even given any literature. Like you, all the info was from this site.
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Yes, even though I asked my GP for a leaflet on diabetes, she said I could find the information online! I was a bit suprised, mind you the waiting area had all the leaflets on conditions removed for hygiene reasons so maybe they dont stock any now, but she could have said to me, that it would help to lose weight and exercise or lower my carb intake etc., she was nice enough to me but I left very confused. She did say only to use the NHS website for information and not to look at other things, not sure why as this place has a lot more information from real people going through the same thing, and I wouldnt be where I am today without joining up x
 
Amity Island said:
One in four people with diabetes don’t receive sufficient information on diagnosis, new research has revealed.

www.independentnurse.co.uk

New report reveals lack of diabetes education - Independent Nurse

The International Diabetes Federation (IDF) has released research showing that people living with diabetes don’t have sufficient access to education and information about their condition to support their care.
www.independentnurse.co.uk www.independentnurse.co.uk
Click to expand...
As others have noted, only 1 in four????
 
I had to ask nurse about what i should eat and she struggled to find an old A4 sheet with about 4 low GI recipes on it...that was all i ever got from the surgery. Again like others i learnt mostly from this site and the internet.
 
20 years later....still don't get much help
 
I am one of those very lucky 1 in 4s! That said, I still find this forum of more use, but at least I was given sensible diet information from the word go, a retinopathy screening within a week (and this was during 1st lockdown!) and regular hba1c checks. Can't fault our surgery, which has a dedicated Diabetic team and retinopathy screening on site. I count myself very fortunate, it's just such a shame there aren't more facilities like our surgery nationwide.
 
Vonny said:
I am one of those very lucky 1 in 4s! That said, I still find this forum of more use, but at least I was given sensible diet information from the word go, a retinopathy screening within a week (and this was during 1st lockdown!) and regular hba1c checks. Can't fault our surgery, which has a dedicated Diabetic team and retinopathy screening on site. I count myself very fortunate, it's just such a shame there aren't more facilities like our surgery nationwide.
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My surgery seem not really helpful at all.
 
I wonder if they actually asked patients. That's not a joke.
 
Amity Island said:
My g.p openly admits they know nothing about diabetes.
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Think how that serves those who don't have the safety net of secondary care for their diabetes. It is scandalous.
 
Jenny65 said:
I got no information, all mine was from this site
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I was told in a rushed phone call;
Don’t eat chips.
Lose weight.
Take this tablet I’ve prescribed.
You might be on it for life, but some people can lose weight and put it in remission. Try to get hba1c below 48. Book an appointment with the diabetic nurse.
Bye.
 
Loobyloo said:
I had to ask nurse about what i should eat and she struggled to find an old A4 sheet with about 4 low GI recipes on it...that was all i ever got from the surgery. Again like others i learnt mostly from this site and the internet.
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It makes you wonder what people would do before the internet, I am so grateful for this site, it makes me not feel alone with my condition.
 
I feel I do have to say that the second doctor that took over my care when my original one was on leave and has continued to do so is brilliant and supportive. I think he is using old information in part (told me I was in remission at HBa1c 50) but he was praising my efforts and seemed to be genuinely surprised how I had lost so much weight and lowered my readings in just 3 months. He did explain to me a lot of things about the tests and said he completely understood my reluctance to take statins but would keep an eye on them as they are still high. Actually, thinking about it, he also thought I had my last liver scan in 2011, and I had it in August this year, I guess he was making an effort to be informative, just that the information was slightly skewed. I felt I was teaching him at points of the call. I also think the reason he was surprised at my results is probably compared to others who are diagnosed with the condition at the practice, and also not given information on diet etc, and then their results obviously won't improve so no changes made. I told him about this site and how it had saved me literally from going down a spiral of depression (and worse) he was pleased, I hope he comes on here to learn a bit more 🙂
 
Jenny65 said:
I feel I do have to say that the second doctor that took over my care when my original one was on leave and has continued to do so is brilliant and supportive. I think he is using old information in part (told me I was in remission at HBa1c 50) but he was praising my efforts and seemed to be genuinely surprised how I had lost so much weight and lowered my readings in just 3 months. He did explain to me a lot of things about the tests and said he completely understood my reluctance to take statins but would keep an eye on them as they are still high. Actually, thinking about it, he also thought I had my last liver scan in 2011, and I had it in August this year, I guess he was making an effort to be informative, just that the information was slightly skewed. I felt I was teaching him at points of the call. I also think the reason he was surprised at my results is probably compared to others who are diagnosed with the condition at the practice, and also not given information on diet etc, and then their results obviously won't improve so no changes made. I told him about this site and how it had saved me literally from going down a spiral of depression (and worse) he was pleased, I hope he comes on here to learn a bit more 🙂
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Hopefully he will also start to recommend it to other patients too!
 
I haven't seen a GP about my diabetes at all. I was diagnosed through a routine health check which was with the practice nurse, she called me with the results and then I've seen her. I already knew a fair amount about diabetes because of my job/ training and did more research (including here) in the week between being given the diagnosis on the phone and having my first diabetes atonement with her. She was very good at explaining and discussing, and willing to be flexible and negotiate not impose a standard solution. So I'm also in the lucky contingent
 
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