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mnd

  1. Northerner

    NHS Fife appoints first dedicated MND clinical nurse specialist

    NHS Fife has appointed its first Motor Neurone Disease (MND) clinical nurse specialist. Louise Murrie will provide dedicated support for MND patients across Fife, from the point of diagnosis right up to end-of-life care. There are around 450 people living with MND in Scotland, 26 of whom will...
  2. Northerner

    Injection of virus-delivered gene silencer blocks ALS degeneration, saves motor function

    Writing in Nature Medicine, an international team headed by researchers at University of California San Diego School of Medicine describe a new way to effectively deliver a gene-silencing vector to adult amyotrophic lateral sclerosis (ALS) mice, resulting in long-term suppression of the...
  3. Northerner

    Dying single mother with MND whose children have to dress her refused disability benefits

    The hardest thing Lorraine Cox has ever had to do was sit down and tell her children she doesn’t know how long she has left to live. It shook the worlds of her daughter Saorcha who is 10, and of her two sons, Ethan, 13, and Lewis, six. Since she was diagnosed with terminal motor neurone...
  4. Northerner

    Neuron death in ALS more complex than previously thought

    Brown University researchers have uncovered new clues about the progression of Amyotrophic Lateral Sclerosis (ALS), a surprisingly common disease that causes the death of motor neurons that control voluntary muscles such as those involved in walking, talking, chewing or breathing. A team led by...
  5. Northerner

    Scientists discover mechanism behind motor neurone disease

    Scientists say they have made a breakthrough in understanding the cause of both motor neurone disease and a rare form of dementia. They have discovered what causes a protein called FUS to stay in a jelly-like state, killing off brain cells. The researchers, from Cambridge and Toronto, said...
  6. Northerner

    Scottish scientists shine a light on MND in new findings.

    Findings from a Scottish study into Motor Neurone Disease (MND) have been published today in the prestigious international neuropathology journal Acta Neuropathologica. MND is a rapidly progressing terminal illness which can cause someone to lose the ability to walk, talk, eat, drink or breathe...
  7. Northerner

    MND Lucy: 'I hope I don't lose my weird-ass laugh'

    There are plenty of things that make having Motor Neurone Disease (MND) "crappy" but losing the ability to speak and laugh would be too much, says Lucy Lintott. The 22-year-old was diagnosed with MND three years ago, making her the youngest person in Scotland with the terminal disease. MND...
  8. Northerner

    Remember the ice bucket challenge? It just funded an ALS breakthrough

    The ALS Association says money raised by viral charity challenge, dismissed as ‘slacktivism’ by many, has helped identify a new gene associated with the disease. It is often easy to dismiss viral charity campaigns as “slacktivism”, which lacks in real-world impact (we never did catch the...
  9. Northerner

    Motor neurone disease patients 'face delays in seeing specialists'

    One in five people with motor neurone disease (MND) waits more than a year to see a brain specialist for help with diagnosis, a snapshot survey suggests. The MND Association report, based on responses from 900 patients in England, Wales and Northern Ireland, says the delays stop people getting...
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