Has anyone had Ozurdex steroid injection for T2?

[sk147]

Hi

I'm asking on behalf of my mum. She is 64 and has been type 2 diabetic for 20 years.

She has been having eye injections due to fluid in the back of the eyes for many years.

They have tried a new drug for the injection (don't know what it's called, sorry) but they said it's not working properly as after 2 weeks the fluid comes back again.

My mum is having panic attacks and anxiety due to this as it has been 7 weeks since the last appointment and she is having kind of blurry vision in the left eye. She has an appointment this Fri 25/07.

So now they are proposing to do a Ozurdex steroid injection.. has anyone done this? How was it? She is really scared for her vision and eyes.

I've tried to read about Ozurdex online but it can be done for different types of conditions so there's scary stuff from different people, so I wanted to ask if other diabetic patients if they've had it done and their experiences?

Thanks in advance.

 

[everydayupsanddowns]

Sorry to hear about your mum’s anxiety over the injections - perfectly natural given the uncertainty.

We have a few members who have had treatment for their eyes. I can’t recall that specific medication being mentioned, but hopefully someone will be along to share their experiences.

 

[everydayupsanddowns]

Looks like @goodybags has had Ozurdex injections in the past which seem to have helped.

There are some threads/posts you can browse here, which may offer additional information

Search results for query: Ozurdex

forum.diabetes.org.uk

 

[goodybags]

Ozurdex for some patients can be a very successful treatment (I know a few who had great results)

as you are probably aware there are many different treatments that are currently used to treat those of us who are affected by the effects of various eye related conditions that can affect Diabetics

If she is anxious I would encourage her to talk it through with her eye consultant, I’ve only had one Ozurdex, but having a Ozurdex implant popped into the eye is no more uncomfortable than any of the other injections or treatments your Mum might have previously had over the years

when I had mine done (around this time last year) I was suprised it was just the same experience as the injections I had previously (over the last about 10/11 years) although I think that might’ve been because it was done by the senior Ophthalmologist, who had previously completed many examinations on my eyes but never actually treated them, they use slightly different equipment but the procedure is very similar to the injections she is used to.

I only had the one Ozurdex which for me actually didn’t really help, because the Ozurdex is a capsule that slowly dissipates in the eye, however for me it became dislodged after about 6 weeks,
If I needed another I would have another as it “dislodging” and ending up in the wrong part of the eye is extremely rare, this was then put weight with cataract surgery, I watched a few you tube videos here’s something rather interesting posted by a consultant in the USA he is a EYE Dr /you tuber himself that performs eye surgery and has here a Ozurdex (although for a slightly different Macular condition)

 

[sk147]

Ozurdex for some patients can be a very successful treatment (I know a few who had great results)

as you are probably aware there are many different treatments that are currently used to treat those of us who are affected by the effects of various eye related conditions that can affect Diabetics

If she is anxious I would encourage her to talk it through with her eye consultant, I’ve only had one Ozurdex, but having a Ozurdex implant popped into the eye is no more uncomfortable than any of the other injections or treatments your Mum might have previously had over the years

when I had mine done (around this time last year) I was suprised it was just the same experience as the injections I had previously (over the last about 10/11 years) although I think that might’ve been because it was done by the senior Ophthalmologist, who had previously completed many examinations on my eyes but never actually treated them, they use slightly different equipment but the procedure is very similar to the injections she is used to.

I only had the one Ozurdex which for me actually didn’t really help, because the Ozurdex is a capsule that slowly dissipates in the eye, however for me it became dislodged after about 6 weeks,
If I needed another I would have another as it “dislodging” and ending up in the wrong part of the eye is extremely rare, this was then put weight with cataract surgery, I watched a few you tube videos here’s something rather interesting posted by a consultant in the USA he is a EYE Dr /you tuber himself that performs eye surgery and has here a Ozurdex (although for a slightly different Macular condition)

She had the ozurdex Injection yesterday but it was very painful for her. They said she moved a little bit so there's a bit of bleeding too.

It is blurry from that eye so she is panicking and regretting doing it now too! The doctor yesterday said it was fine as she was panicking and that that the blood will absorb within a week.

But we are going to the A&E now as she is really panicking about it as its blurry vision.

I'm getting scared too but I hope everything will be fine.

(She has already had cataract in that eye and had the Vitrectomy surgery for it last July but she said her vision is now just like how it was when she had cataract in that eye) is it possible to get cataract again in the same eye as I know it is a side effect?

I hope everything will be okay

 

[goodybags]

sorry to hear that it never went well for your Mother @sk147

Like many others ive been having various infections in my eyes for nany years
and yes it's deffinaty all about relaxing when about to receive and receiveing the procedure (yes easier said that done)

If your Mother has cloudy/ vision it's as well your going to Eye Casually

I hope they will be able to scan to see what is happening, as happened to me it is possible the Ozurdex can (rater than floating to the retina basically attatch itself to the lens) although for me this took 6 weeks

Im sure if all is not currently OK they can plan to put things right.

 

[sk147]

sorry to hear that it never went well for your Mother @sk147

Like many others ive been having various infections in my eyes for nany years
and yes it's deffinaty all about relaxing when about to receive and receiveing the procedure (yes easier said that done)

If your Mother has cloudy/ vision it's as well your going to Eye Casually

I hope they will be able to scan to see what is happening, as happened to me it is possible the Ozurdex can (rater than floating to the retina basically attatch itself to the lens) although for me this took 6 weeks

Im sure if all is not currently OK they can plan to put things right.

Thanks for your reply.

We went to the A&E eye hospital yesterday.

Basically the doctor said she has vitreous haemorrhage. Hearing that just scared me so much as I've googled it and it's really scary. The doctor said she hasn't got no detachment or tear which is good but he kept saying "for now" which again was scary. But I hope it stays that way and the vision clears up soon.

We're going back to the opthalmology clinic so she can be frequently seen due to this.

Ended up in tears this morning but I hope everything will be okay

 

[goodybags]

Thanks for your reply.

We went to the A&E eye hospital yesterday.

Basically the doctor said she has vitreous haemorrhage. Hearing that just scared me so much as I've googled it and it's really scary. The doctor said she hasn't got no detachment or tear which is good but he kept saying "for now" which again was scary. But I hope it stays that way and the vision clears up soon.

We're going back to the opthalmology clinic so she can be frequently seen due to this.

Ended up in tears this morning but I hope everything will be okay

I slightly understand your mums anxiety/ upset whilst I’m no expert and don’t fully what a vitreous haemorrhage is, I think I had one of those in the past (prior to any treatment) which was what initially put me under the DMO clinic & was treated with laser treatment, although mine didn’t affect my vision in the same way you described it, I remember my vision wasn’t “normal “
you did the right thing yesterday I hope it calms down / responds to treatment

I ended up last year at the John Radcliffe hospital in Oxford between Christmas and New year, where they were planning on doing complex cataract surgery, that was going to consist of removal of a dislodged Ozurdex a Vitrectomy then Lens Replacement day surgery, I met other patients we were all comparing what we were having done, my surgery went extremely well, well but remember them telling me clearly what the risks were which was quite upsetting at the time.

 

[everydayupsanddowns]

We're going back to the opthalmology clinic so she can be frequently seen due to this.

Good to know your Mum is being closely monitored, @sk147

Sorry to hear about the haemorrhage and the anxiety your Mum has been experiencing.

Fingers crossed for a successful outcome, and more positive feedback at your next appointment.

 

[trophywench]

It's true that the things they warn you about pre any operation ARE usually scary - eg some Op you absolutely MUST have to save your life when they say that, By the way, of course, you might have a terribly bad reaction to the anaesthetic which means you drop dead on the operating table. Oh, thanks for that. Now, where do you need me to sign? 🙂