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CBD (Cannabis) Oil for honeymoon phase type 1?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Simon Workman

Simon Workman

Active Member
Relationship to Diabetes
Type 1
Hdy guys. I was diagnosed with type 1 diabetes just over a year ago. I've been on 2 x 500mg metformin and 1 x 30mg glicazide since day one and my dosage remains the same today. They say I will still have to go onto the insulin at some stage although it looks like my pancreas is still performing reasonably well for the time being.

Thing is I've been researching about the use of CBD oil for treatment with various diseases and illness and it seems to be beneficial in an awful lot of cases. Some people are saying they believe it may stop or at least slow down the destruction of the remaining healthy beta cells in the pancreas of type 1 sufferers. I was wondering if any of you guys had tried it or have any info on this? Seriously considering giving it a go.
 
Of course the largely non psychoactive CBD oil has the advantage that it doesn't have to be smoked hence avoiding any respiratory problems. Every site wants to know if it's the panacea of all ills as the plethora of reports and 'research' seem to suggest. I have to say some of it sounds very promising and it's definitely not snake oil. There are some promising reports out relating to diabetes and I'm sure you've read many of them Simon. Much is on countering side effects especially neuropathy pain rather than preserving pancreatic cell function and there's more on use by type 2's than type 1's (because of its effect on inflammation).
Trouble is getting reliable, tested, licensed stuff because your GP won't prescribe it.

If you're intent on using it during the 'honeymoon' period, be aware that it has been reported to induce nocturnal hypos in some people so monitor carefully.
 
I've never used cannabis of any sort (apart from passively smoking it from lots of houses/neighbours I walk past), and I've no plans to start tbh.

I'm very confused by your diagnosis though Simon - I have never heard of someone being given a Type 1 diagnosis and not immediately started on insulin. Was it LADA or similar that they diagnosed? Very surprised that you are on oral meds. I would have thought insulin would be essential.
 
The same as Mike with regard to no experience with cannabis and unable to understand how you are Type 1 but no insulin. I also thought that insulin was essential for Type 1 diabetes.
 
Yeah it's left me a bit baffled and frustrated too. Anyone I know personally who has type 1 were straight onto insulin but the doctors are pretty certain it's type 1 I have and they refer to this phase in experiencing as the honeymoon phase. I looked it all up and it is a thing it seems, just not terribly common. They told me at the start I'd do well to make a year on the tablets but a year has passed and my dosage hasn't even had to be increased. I have plenty of room to increase it too so it would seem it will last a decent bit longer yet.

Thanks for all the input folks! Much appreciated!
 
Simon Workman said:
Yeah it's left me a bit baffled and frustrated too. Anyone I know personally who has type 1 were straight onto insulin but the doctors are pretty certain it's type 1 I have and they refer to this phase in experiencing as the honeymoon phase. I looked it all up and it is a thing it seems, just not terribly common. They told me at the start I'd do well to make a year on the tablets but a year has passed and my dosage hasn't even had to be increased. I have plenty of room to increase it too so it would seem it will last a decent bit longer yet.

Thanks for all the input folks! Much appreciated!
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To be honest Simon, you're doing so well that I'd hold on any idea of using CBD oil at the moment. You don't want to pre-empt anything but your call. Best wishes, Amigo
 
Simon Workman said:
Yeah it's left me a bit baffled and frustrated too. Anyone I know personally who has type 1 were straight onto insulin but the doctors are pretty certain it's type 1 I have and they refer to this phase in experiencing as the honeymoon phase. I looked it all up and it is a thing it seems, just not terribly common. They told me at the start I'd do well to make a year on the tablets but a year has passed and my dosage hasn't even had to be increased. I have plenty of room to increase it too so it would seem it will last a decent bit longer yet.

Thanks for all the input folks! Much appreciated!
Click to expand...
Like others, I'm confused about your diagnosis with type 1 diabetes and over a year of treatment with tablets and no insulin. I'm sure you have considered the legal situation, but why add to employment problems of type 1 diabetes by risking a criminal record (for having more than a small amount for personal consumption)?
 
Copepod said:
Like others, I'm confused about your diagnosis with type 1 diabetes and over a year of treatment with tablets and no insulin. I'm sure you have considered the legal situation, but why add to employment problems of type 1 diabetes by risking a criminal record (for having more than a small amount for personal consumption)?
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Er, they sell this in Holland and Barrett, it's not the same as the illegal stuff.
 
It's the CBD oil and doesn't have the psychoactive ingredient which gives the high. Yes Holland and Barrett sell it quite legally.
 
Robin said:
Er, they sell this in Holland and Barrett, it's not the same as the illegal stuff.
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I know CBD oil isn't illegal, but cannabis has been mentioned in this thread, so just wanted to mention the legal aspect of that. Sorry if I wasn't clear enough.
 
Yuck, I hates the smell, if you get on the bus you nearly keel over! :D
 
Copepod said:
Like others, I'm confused about your diagnosis with type 1 diabetes and over a year of treatment with tablets and no insulin. I'm sure you have considered the legal situation, but why add to employment problems of type 1 diabetes by risking a criminal record (for having more than a small amount for personal consumption)?
Click to expand...
Cannabis oil is a product legally on sale in the UK which is derived from low THC and does not contain the major psychoactive component in recreational marijuana (high CBD) therefore is not psychoactive and does not produce the 'high' of recreational marijuana... this 'kind' of cannabis is often referred to as Hemp...'full fat' cannabis however is a class B drug...proscribed under The Misuse of Drugs Act...possession of which could amount to an offence...even a small amount for personal use could incur a conviction...a criminal record & financial penalties.
 
Just say no. Besides, the munchies will play havoc with your blood glucose control. :D
 
Simon, I was on here looking for some support as my husband has diabetes and I read your story about diagnosis and treatment and the subsequent comments from other contributors. My husband was diagnosed in 2013 (aged 29) with Type 1 (type undecided) and he was on the same medication as you Metformin (MF) and Glicizide. His sugars were so well controlled that he was down to 1 x 500 MF per day. This lasted for 2 years- which was quite the honeymoon period. Then quite randomly he was told that the diabetes was gone despite the antibody results (I know the medical team couldn't figure it out either). So we had a blissful 2 year diabetes free break but then 4 weeks ago it all came back again. He has the antibiodies for type 1 but again the MF and Glicizide have it under control. His medical team have referred him to Exeter for genetic testing.Its a merrygoround where no one has the answers. I hope your case is more straightforward!
 
Simon Workman said:
That's really interesting Heather. Makes me wonder if mine could be something similar.
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Yeah I thought they sounded similar. A few other commenters here hadn't heard of the honeymoon phase for type 1 and probably not one as long as yours. Just wanted to let you know that your not on your own! Our team has only experience of 1 other person who didn't require insulin. I'm convinced my husband has MODY which could mean that he may never require insulin. The genetic testing will hopefully give us the answer. Maybe you could push your diabetes team to get you tested too?
 
Wow! So am i! What a coincidence! Can't believe that! Could you please keep me updated on progress? I will mention what you said at my next appointment which is in a couple of months
 
Small world!! Will do Simon. I believe the genetic tests can take up to 6 months. Keep the pressure on them to investigate it further- I wish we'd known about the genetic tests last time so we wouldn't have to keep going round in circles with diabetes types.
 
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