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Newly(ish) diagnosed Type 1...

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Andy499

Andy499

New Member
Relationship to Diabetes
Type 1
Im Andy im 28 years old.

I was diagnosed two months ago but not told what type I have.

Yesterday was told im Type 1 but tablets are working, which is why im confused.. Im on gliclazide 40mg AM and 80mg PM and my sugars never go higher than 10, sometimes they even go to low.

Since I was told yesterday im absolutely bricking myself at the thought of having this for the rest of my life.

I physically cant stab myself with a needle many times a day, i just wont be able to do it.

Im absolutely lost and i cant handle it. I dont know what to do, feel like giving up completely if you know what i mean.
 
Hi Andy going onto insulin is easier than you think, well it was for me, I was terrified of having blood taken or having a needle at the dentist although I have got a few tattoos that's completely different haha, it's what we have to do to survive unfortunately and the fear disappeared for me after I gave myself my first injection in the hospital, I still shook every time i went to do one for the first couple of weeks though, I find now that I barely feel it and the needles are actually quite small x
 
Doesnt it get in the way of your life? Having to add up every carb you eat, not being able to enjoy food? being worried all the time? Injecting 10 times a day. I just cant do it.
 
No it really doesn't adding up the carbs can be a bit of a pain, what way do you mean not enjoying food, what kind of worry I'm not worried all the time I generally only inject 4 times a day as do most of us on MDI if you have any questions feel free to ask, I was diagnosed just a week before my 25th birthday x
 
How do you add up the carbs when you have a take away? or when you eat out or have pop corn at the cinema? what do you do?

only 4 times? thats loads, i dont think i can manage once.

But what i dont understand is why gliclazide is working on me.
 
I generally don't have takeaways now as the time the others in the household have their takeaway doesn't really suit me, but for takeaways and eating out there is a book or app available called carbs and cals with the size of a portion and a guide to carbs in it, as for the cinema I don't go as the closest 1 is 30 miles away haha but some cinemas and places to eat out have nutrition information information, have faith you can do this the outlook if you don't would be much worse and as for the tablets working i can't help with that x
 
Hi Andy,
Kaylz said:
it's what we have to do to survive unfortunately
Click to expand...
As Kaylz says, you will get used to it. I did, and I was diagnosed in April last year at 44. Felt like I was broken, lost, alone & bewildered by the new regime that was being forced on me.
But I am astonished that I have learnt so much in a year - the calculations don't really get in the way once you're used to it. You do get to know roughly how much Carbohydrate is in portions of everyday meals and the beauty of it is, if you're on MDI (multiple daily injections) and you miss a meal it doesn't matter as your long lasting insulin covers your "normal" requirements.
Yep I do have to agree though, takeaways & buffets are challenging, but even if I get my guestimate slightly wrong it won't be far off. Carbs & Cals is a fantastic little book (and mobile app) that I have with me all the time.
By the way, popcorn is really good for me - salted of course, not sweetened or toffee... and it's my snack of choice. Very filling and relatively low carb.
Ask any questions you need to - I certainly did and it really helped put my mind at rest that I could actually manage this condition...
It's a credit to everyone on here that the support & advice is fantastic. Read some of the posts on here about how other people manage and you may find it's not all quite so scary after all.
Regards
zx
 
Thing is i havent been told anything by the docs or anything. Im completely lost.. And still theres no way i can stab myself with a needle. I nearly pass out at the sight of them. luckily enough you cant see the finger prick one, but i hate doing that it hurts.
 
Have you got an appointment to see anyone about going on to insulin, you will be able to do it you just have to believe in yourself and know that your doing the best thing, also your fingers will get used to it eventually and you will find that some parts hurt more than others so don't be worried about it as that won't do anything for your bs levels either x
 
No im being left in the dark, no information nothing. But the tablets are still working for me my sugar never goes over 9. Thats what i dont understand, how can i be type 1?
 
I can't answer that question really as I know nothing about tablets or that, that would be something you would have to ask a GP, I don't understand why if you're type 1 and they know this though that they aren't wanted to get you started on insulin straight away I would probably phone your GP surgery and ask to have maybe a telephone appointment as you don't know what's going on it's very unfair that they have done this to you especially when you clearly sound like you are now in a state of panic x
 
Well.. Im not in work today because of my mental state, so yes, i am panicking. I rang the GP and they told me theres no appointments and i rang diabetic nurse a few times and no answer.

honestly cant handle this, and my blood sugar is higher than normal today because of the stress and worry. Its 9.2 right now and at this time of day its normally around 5.
 
Do your diabetes team have an answering machine or is there an email address you can contact them on x
 
don't worry about a 9.2 either there are a few people on here that would love to be at 9.2 at the moment the most important thing is that you get the help and support you need, us here will give you as much advice, help and support as we can x
 
Hi Andy, take a deep breath and try not to panic (easier said than done I know). I was diagnosed with type 1 a week ago after having previously been diagnosed with type 2 a couple of years before (metformin tablets had worked for me since my diagnosis but doctors have told me that it was because my pancreas was failing over time until it packed up altogether, maybe there is a similar explanation for u but definitely would rely on the getting the proper answers from ur health team). The insulin regime shocked me at first and I felt completely overwhelmed. However I've come a long way in just a week with many ups and downs, both physically and emotionally, but have come to accept the card I've been dealt and find my anxiety is ebbing away bit by bit (especially as I've learnt more about the condition with the support of people on here - knowledge is power and all that). The insulin injections don't hurt (nothing more than a small scratch if that but most the time are pain free for me) but it seems there is a lot of support for people who are not comfortable with injecting. As mentioned before the multiple daily injections allow you much more flexibility to live your life as you choose (at least that's my experience, I have a lot more freedom now that I did when I thought I was type 2). Don't worry, I'm sure you'll find the strength to get through this, especially once you get the answers you need to move forward Xx
 
Thanks for your support but how can you say ill have freedom when i cant eat what i want and have to count everything i eat... Im so anxious to even eat now i literally feel like just shutting myself away and not taking anything until i die....
 
When you start on MDI as you probably will you can eat whatever you want in moderation just like any so called 'normal' person, a type 2's diet is much more restricted than a type 1 on MDI or a pump, as for counting what you eat you just have to get used to it I'm afraid, they may not start you carb counting instantly and may have you on fixed doses to start with, but I strongly suggest you mention carb counting as it should in theory give you better results x
 
Andy, really think you need to speak to someone, is there maybe an out of hours GP service or walk in centre you can access to put your mind at ease? The first thing my diabetic nurse told me was that I could eat what I want (which was great news to me as food is a big joy in my life). As for the counting, I think that will be a little time consuming at first (the carbs and cals book makes life simpler) but I've been told by others that over time you can add up quickly without necessarily having to refer to anything. I think it's a case of putting in the hard work and effort at the start and reaping the rewards later on. And don't be anxious to eat, my blood sugar was 35 when i was taken ill last week, it's now down between 15-20 for the best part of the day but the nurse has told me that this is nothing to be worried about as temporary high levels will not cause lasting damage xx
 
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