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Woman's Hour interview about T1 excellent

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
SB2015

SB2015

Well-Known Member
Relationship to Diabetes
Type 1
Did anyone else hear the interview this morning (apologies if Northerner has already flagged this and I missed the post)?

A very good interview referring to:
-The need for planning to manage T1 on a data to day basis
-Difficulties for many on transfer from Paeds to adult care coinciding with going to Uni
-Occurrence of Diabolimia (sp ?)

I did not need to scream at the radio even once.
It just made me feel good about how well all do day-to-day in managing it all.
 
That's Diabulimia, SB, a combination, inappropriately, of the words diabetes and bulimia. What it is is the under use of insulin to lose weight or stay thin. It is a situation long known about- I knew about it when I was a student, but it wasn't given that name. I remember a girl (it's almost always a girl) being admitted for treatment. It's not recognised as a mental disorder by DSM, the psychiatric diagnostic bible.

For various reasons, I don't listen to Woman's Hour. I suspect Northerner doesn't either.
 
It was a very good interview, emphasising the importance of people recognising the condition, and spotting the signs early. It can occur at any time but as Mikey said mostly in women, and more common in people who have had diabetes a while and in their twenties.
 
[QUOTE="mikeyB, post: 665667, member:
For various reasons, I don't listen to Woman's Hour. I suspect Northerner doesn't either.[/QUOTE]

Go on Mikey. If you listen to this I will give the virtual pub another go.
 
grovesy said:
I am a woman but I don't think I have ever listened to it.
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Now I am retired it seems to be on whilst I am having breakfast!!
 
I am a radio 4 geek, AND I listen to The Archers!!
 
Thanks for this post SB2015 and the link Northerner 🙂. Well worth a listen and all good information. It was me to a tee, slipping through the net between paediatric and adult services when I went to university. It is a very worryingly high percentage of approx 40% of young T1 women that are manipulating insulin to varying degrees to achieve weight loss.

Good to hear it covered sensibly and getting better recognition in clinics but I agree with the comments about eating disorder clinics not being able to cope with the T1 element - it really is such a tangled web of a disorder and having control of your own insulin makes weight loss very rapid and devastatingly effective. It really does need early recognition and specialist help to try and prevent people like myself wrecking their bodies and storing up relentless complications for the rest of their time all for the sake of being thin.:(:(
 
It's on the Light Programme, at 2pm every afternoon, immediately after 'Listen with Mother' and Dorothy Oxenford has just finished reading you another story.

Or did you have a deprived childhood and not listen with your mother?
 
Well there's hardly any help anywhere for anorexia or bulimia so add T1 to that and you haven't a hope, same as with any kind of mental disorder and diabetes.
 
trophywench said:
Well there's hardly any help anywhere for anorexia or bulimia so add T1 to that and you haven't a hope, same as with any kind of mental disorder and diabetes.
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This is what the charity DWED are seeking to remedy, and a great deal of work is being done to get things through NICE. They also help people navigate existing services and help educate healthcare professionals - a very worthwhile charity 🙂
 
I did listen to the interview, SB, and I really don't know what to say. If ever there was an orphan condition, this is it. It's not discussed on this forum, except for Flower, who is a lone brave voice, but its obviously commoner than is ever perceived. To my shame, I've never looked into this condition, but then in GP practice and psychiatric work I haven't come across it, except, as I mentioned when I was a student. This is surely something NICE should be addressing. I will be bunging some of my ill-gotten gains in the direction of DWED, because I feel I've got to do something.
 
I was lucky enough to meet a special young lady (at a diabetic meet in Brighton) who is heavily involved in promoting DWED.

Shw had come across teenagers with DWED, a couple of whom had died from the condition. Might it have been her you heard on the radio,
 
mikeyB said:
I did listen to the interview, SB, and I really don't know what to say. If ever there was an orphan condition, this is it. It's not discussed on this forum, except for Flower, who is a lone brave voice, but its obviously commoner than is ever perceived. To my shame, I've never looked into this condition, but then in GP practice and psychiatric work I haven't come across it, except, as I mentioned when I was a student. This is surely something NICE should be addressing. I will be bunging some of my ill-gotten gains in the direction of DWED, because I feel I've got to do something.
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See you at the pub tonight
 
Hazel said:
I was lucky enough to meet a special young lady (at a diabetic meet in Brighton) who is heavily involved in promoting DWED.

She had come across teenagers with DWED, a couple of whom had died from the condition. Might it have been her you heard on the radio,
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It was meeting J in Brighton that prompted me to dress up like this and run the Brighton Half Marathon - generous forum members donated £800 to the charity 🙂

dwedf.jpg
 
Is it Jacqui Allen? She was a lone voice really and since she was 'lone' for so long I'm amazed at how much she actually found and still finds the time to do.

I see DWED now have involvement with D Co UK to give online support other than Facespace - well normally I don't have very many nice things to say about them - but I really do have to make an exception here.

What a BLOODY shame it isn't DUK is all I can say (not being party to any of the nitty gritty) and it's had to be left to a commercial operation instead of the Charity that's sposed to support us ALL!
 
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