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Pumper_Sue
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- Relationship to Diabetes
- Type 1
What's up H?
I just seem to get good levels for two weeks then it goes nuts for a week or so then back to good. I'm just fed up of it... I know I seem awful complaining after only having to deal with this for 7 months but I really just don't want this anymore (and now I sound like a child throwing my toys out the pram! sorry!!).
I knew this wouldn't be easy, I just wish sometimes it would make more sense.
Oh, and work made me write a procedure on myself - which I know in one sense is sensible as the comment from my manager was 'so we know if we ever need to give you insulin' (scary!!) but it just made me feel different and singled out.
Sorry, in general everyone is amazing and I do feel really supported by everyone... I'm just frustrated by the whole thing!
I knew this wouldn't be easy, I just wish sometimes it would make more sense.
Oh, and work made me write a procedure on myself - which I know in one sense is sensible as the comment from my manager was 'so we know if we ever need to give you insulin' (scary!!) but it just made me feel different and singled out.
Sorry, in general everyone is amazing and I do feel really supported by everyone... I'm just frustrated by the whole thing!
Casper
Well-Known Member
- Relationship to Diabetes
- Type 1
Oh, and work made me write a procedure on myself - which I know in one sense is sensible as the comment from my manager was 'so we know if we ever need to give you insulin' (scary!!) but it just made me feel different and singled out.
Sorry, in general everyone is amazing and I do feel really supported by everyone... I'm just frustrated by the whole thing![/QUOTE]
I think the work procedure has sparked your desperation - I got turned down for life assurance last week and spent the rest of day absolutely upset, although I knew the d would be a problem. Its the feeling of being different when you really don't want to be. Its being reminded that you have this condition that you can do nothing about. Take care.
Sorry, in general everyone is amazing and I do feel really supported by everyone... I'm just frustrated by the whole thing![/QUOTE]
I think the work procedure has sparked your desperation - I got turned down for life assurance last week and spent the rest of day absolutely upset, although I knew the d would be a problem. Its the feeling of being different when you really don't want to be. Its being reminded that you have this condition that you can do nothing about. Take care.
robofski
Well-Known Member
- Relationship to Diabetes
- Type 1
I've never been anywhere near a hospital, only ever seen a doctor twice, all my treatment (had 'D' for 6 years but only been on insulin for 10 weeks) has been through practice nurse and now the DSN.
When I went on to insulin I told my employer and they passed out a leaflet about Hypo's to everyone and pinned one up on the notice board, I made it very clear to them that they should never need to administer insulin, but be on the lookout for Hypo's, no need to worry about that yet though I can't get consistent readings in the 4-8 range let alone be worried about a hypo!
I know what you mean about the ups and downs, I get a big smile if I get a 6 (not had many of them) I think I'd do cartwheels if I got two 6's in a row, never happened yet!
My wife has been very supportive and my kids understand what it's all about, my 10 year old records my results in my app for me and prepares my injections, it's like having my own little nurse 🙂 Finding this forum has been a great resource too, it's nice to have other people to sound off with who really know what you're going through.
I've accepted that I still have a great deal to learn and I'm trying not to let the numbers become an obsession buts its difficult, I'm longing for a day in the normal range, slowly slowly catchy monkey!
What a ramble, and I've not been drinking! Chin up, you'll get there I'm sure 😉
Dan
Ellie Jones
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- Relationship to Diabetes
- Type 1
We all need to chuck our toys out the pram every now and again, it does make room as often the negative feeling gets lobbed with them too🙄
Just make sure when you tossing them toys, you don't pick up your insulin pen, BG meter or hypo kit as that really causes problems!
Perhaps you'll hitting the end of your honeymoon period, so what's left of your pancreas ability to produce some insulin is spluttering, so hopefully will settle down..
Just make sure when you tossing them toys, you don't pick up your insulin pen, BG meter or hypo kit as that really causes problems!
Perhaps you'll hitting the end of your honeymoon period, so what's left of your pancreas ability to produce some insulin is spluttering, so hopefully will settle down..
trophywench
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- Relationship to Diabetes
- Type 1
Errr, I'm not 100% certain that's the correct procedure under the Equality Act, is it? (rather the opposite, I'm pretty sure it's diametrically wrong - the disabled should never be made to feel 'singled out' or 'different'.....)
OK - I mean yes they do need to discuss it with you and both of you need make sure they have it right - but the person who is in charge of H&S should do this in consultation with you! There's little point in having a procedure if the people who have to 'do' it aren't fully au fait.
How do they intend on conveying this to the First Aiders, who would need to do whatever in the case of your being passed out? - if they don't understand it properly? I'd want them to test my BG whilst somebody else rang 999 and would also be willing to put that in writing so nobody could get sued for assault. So your finger hurts cos they did it too hard - better than being dead potentially, isn't it?
You know like the fire alarm goes off and everyone runs round like headless chickens with the Fire Marshalls just shrugging their shoulders and saying they don't know what's supposed to happen so don't ask me ....
I have a bee in my bonnet about this, because I could write a damn book on things employers (well one in particular!!!) did wrong !
OK - I mean yes they do need to discuss it with you and both of you need make sure they have it right - but the person who is in charge of H&S should do this in consultation with you! There's little point in having a procedure if the people who have to 'do' it aren't fully au fait.
How do they intend on conveying this to the First Aiders, who would need to do whatever in the case of your being passed out? - if they don't understand it properly? I'd want them to test my BG whilst somebody else rang 999 and would also be willing to put that in writing so nobody could get sued for assault. So your finger hurts cos they did it too hard - better than being dead potentially, isn't it?
You know like the fire alarm goes off and everyone runs round like headless chickens with the Fire Marshalls just shrugging their shoulders and saying they don't know what's supposed to happen so don't ask me ....
I have a bee in my bonnet about this, because I could write a damn book on things employers (well one in particular!!!) did wrong !
In my opinion, the one thing they should NEVER DO AT ANY TIME is inject you with insulin. As someone else said, all they need to know about is hypo treatments, but then nothing should be done unless they are fully aware of the full facts and your BG levels. If you are unconscious its 999 and telling the operator you are Type 1 and unconscious. If they can test your BG then fine, extra info to give, but to inject you with insulin if unconscious could be scarily dangerous.
- Relationship to Diabetes
- Type 1
- Pronouns
- He/Him
Bah! 😡 It's the ole TV Drama/lazy journalism/Hollywood misinformation isn't it. AGAIN!
Scriptwriters know there's a time-critical 'emergency' situation (hypo) and they know diabetes has to do with something technical and medical (insulin) so they can easily make Dramatic Things Happen. Nothing like so much fun if the Bruce Willis/Nicholas Cage skydives onto the stricken jumbo only to find that little Johnny has already escaped a 'diabetic coma' because a flight attendant just gave him something from the sweet trolley.
And so people get told again and again that if they come across a diabetic in trouble what they need is the very thing that will make the situation worse. Heaven help them if a have-a-go hero finds an insulin pen on their person.
Drives me nuts!
lauraw1983
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- Relationship to Diabetes
- Type 1
Can I ask if this is related to your ladies cycle at all? I also get crazy levels at different times of the month, it's SO frustrating. It is all linked to hormones and I have to up my ratio of insulin at certain times too, grrrr. Is there any pattern?
We were diagnosed at the same time, and I think those first few months are so full on and you are trying to take everything on board that it hits you around this time. I have had huge moments of "f*** it" recently too because I am fed up with this and looking forward to it being every day forever is just depressing. However we just need to battle on, I try to remind myself that at least the treatments are a lot better than they once were and it's a lot more manageable than it once was too. I will be pushing for a pump (well to go on the waiting list) at my next appt though because my busy life as a Mum of two little ones, I think it would benefit me hugely! It's so unfair how they are so selective about who gets them at the moment, it should be much more widely available here for people who want it.
Don't hide it from your hubby, he needs to know how rubbish you feel too so her can support you.
As for your work, I am fairly shocked they asked you to write something. I work in a really small office, and just keep my hypo stuff in my drawer/the fridge and have just said if I am acting odd to give me something sugary - I hope it never happens!!!
PM me whenever, if you want to add to facebook (if you are on there) then I'll give you my details xx
Firstly, thank you all for replying – it constantly amazes me how people on here talk the time to respond to strangers who are basically moaning (again!) 🙂 so thank you
Casper – I think you might be right… sometimes I just want to be treated like everyone else.
I feel I should say, in general work are great, and really supportive and normally not intrusive. I understand the need for a procedure to be in place but like you say trophywench there is a way to do that! It does make me giggle that along with myself there are 5 other trained first aiders and we all do the same course which covers diabetes so why my manager (also first aid trained) even made the statement 😱 Tina – I’ve put in bold underlined writing that under no circumstances should anyone ever go near my insulin! Hopefully I’ll never get to the point of not being able to look after myself but in theory at least now they’ll do the right thing . Everydayupsanddowns I completely agree –made me think of con air when you said that! I’m amazed that with all the research that is available they get these things wrong… although I suppose giving someone a can of coke doesn’t have quite the same suspense!
Ellie – thank you for making me giggle!
Laura – I’m looking into the cycle thing as had the same thought… will keep checking over the next month or so and hopefully will shed some light on this!! I hope you are able to get a pump, I’ve not really looked into it – don’t think it would be for me at the moment but if/when it would become more beneficial for me I hope I win the postcode lottery that I understand it to be 🙂.
Thanks again all 🙂
Casper – I think you might be right… sometimes I just want to be treated like everyone else.
I feel I should say, in general work are great, and really supportive and normally not intrusive. I understand the need for a procedure to be in place but like you say trophywench there is a way to do that! It does make me giggle that along with myself there are 5 other trained first aiders and we all do the same course which covers diabetes so why my manager (also first aid trained) even made the statement 😱 Tina – I’ve put in bold underlined writing that under no circumstances should anyone ever go near my insulin! Hopefully I’ll never get to the point of not being able to look after myself but in theory at least now they’ll do the right thing . Everydayupsanddowns I completely agree –made me think of con air when you said that! I’m amazed that with all the research that is available they get these things wrong… although I suppose giving someone a can of coke doesn’t have quite the same suspense!
Ellie – thank you for making me giggle!
Laura – I’m looking into the cycle thing as had the same thought… will keep checking over the next month or so and hopefully will shed some light on this!! I hope you are able to get a pump, I’ve not really looked into it – don’t think it would be for me at the moment but if/when it would become more beneficial for me I hope I win the postcode lottery that I understand it to be 🙂.
Thanks again all 🙂
trophywench
Well-Known Member
- Relationship to Diabetes
- Type 1
I think ... it was easier for us because there was nothing we could do, IYSWIM. One jab a day, no blood testing, eat what we tell you to when we tell you to eat it and no dose adjustment. Female hormones? - what's that about? - nobody ever suggested any such thing until well after me hysterectomy! LOL Ignorance was bliss mainly.
Of course, knowing what we know now - yes it was awful, no flexibility and God knows what our BG was in between hospital tests.
But we just got on with it and fitted our lives round it. End of story.
With flexibility, we have a lot more variables to think about which makes it all more complicated from the outset for newbies, whereas folk like me received all this info in bite-sized pieces over the years as advances were made.
Baby steps and all that jazz - you climb the hill a lot easier with smaller steps .....
I think you are doing absolutely great, I do honestly!
Of course, knowing what we know now - yes it was awful, no flexibility and God knows what our BG was in between hospital tests.
But we just got on with it and fitted our lives round it. End of story.
With flexibility, we have a lot more variables to think about which makes it all more complicated from the outset for newbies, whereas folk like me received all this info in bite-sized pieces over the years as advances were made.
Baby steps and all that jazz - you climb the hill a lot easier with smaller steps .....
I think you are doing absolutely great, I do honestly!
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