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The Forum's future - your thoughts please!

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Regarding the posters - these are still available, just click on Downloads at the top of the screen. There is an A4 sized poster and and leaflet-sized one (although the text does need updating which I will be looking into!). I would personally like to see some 'business card' style adverts that maybe could be included in DUK publications and also sets that we could give to our DSNs and GPs to hand out 🙂
 
Regarding the posters - these are still available, just click on Downloads at the top of the screen. There is an A4 sized poster and and leaflet-sized one (although the text does need updating which I will be looking into!). I would personally like to see some 'business card' style adverts that maybe could be included in DUK publications and also sets that we could give to our DSNs and GPs to hand out 🙂

I'd happily take some cards up to the clinic and the surgery.
 
Alan....I think your idea of business cards is brilliant, I think they take up less space on the desk of a nurse who may hand them out rather than place them in a cupboard like posters.

John.
 
As someone mentioned on another thread, although we are generally very busy and increasing the membership daily, we are still only scratching the surface of the huge number of people who might benefit.


Just one thing that has come to me in the last hour, do you know how many people actually view the forum daily? It could be that more people benefit from the board without us knowing and those people don't feel the need to join the community, I lurked for a while before joining but still managed to learn a few things along the way from other people's experiences.

The word ''clique'' is not appropriate to the forum as it's only friendships built up over time and formed during forum meet-ups, I've never attended a get-together and certainly don't feel left out in the cold when posting.
 
Twitter is probably a really powerful tool for promotion of the forum. I know D-UK have one, so should their forum!

Also, perhaps the general discussion forum could simply be moved up? I always ignore it because its not right there on my page!

Something I think most forums have which I do not think you should do is split T1, T1.5, T2! I don't think this works, its much more interesting to have views from everyone not just those that share your type. Plus there'd only be about three of us in a T1.5 😛

The forum does indeed have its own twitter account

@DSforumUK

DUK have recently directed someone needing help to their own website or careline. No mention of the forum. Do they actually know we exist or are we their poor relation I wonder ?

As said, there are always cliques on forums, and the St. Bedeia serves as a chatroom of sorts. I think a chatroom proper would take posts away from the main forum and would itself be very clique'y. And would be near impossible to moderate. A spammer could quickly devastate it.

Rob
 
On the subject of integrating IM/IRC into the forums ? my professional institution (The IET) has a go at doing this some years back. It never really worked since not enough people were using it at the same time and it was very very slow (compared with using a direct IM client).

The other community I?m involved in don?t use external IM since they are an online SecondLife group and SL has built in IM for chatting anyway?

You could use a facebook group or a G+ (hangout) for the purposes of chatting more directly. But it depends on how much you trust those organisations for privacy (i.e, they record the chat).
 
My 4 pennorth.

Firstly Cherrypie and Copepod have both just completely gobsmacked me! - as a long-standing diabetic myself I regard both of you as exemplars of how diabetics can optimally treat themselves, you both have a way with words and getting things across to people. Copepod is quite analytical about situations; I appreciate that because I'm not very; it's more gut reaction with me. Cherrypie finds some of the most interesting articles/bits of research etc on D related topics, nutrition, whatever - it's ever been my pleasure to come across. I regard you both as 'wise' (diabetically speaking) friends!

We do have silly 'chats' with each other sometimes it's true (bacon sandwiches and Landrovers springs to mind) - but the minute someone chips in with a D topic or summat that requires a serious answer, the vast majority of us who might know summat about whatever it is, snap straight back into 'advisory' role.

As some of you know, I've only attended one meet. Yes, I did wonder if it would be 'cliquey' - it wasn't - as ever if you are prepared to be 'open' with folk, people are 'open' with you. I enjoyed it. I liked the people I met. I don't partic want to travel all over the country to meet people from any of the forums I or we belong to (be it D, cars, motorbikes, motorhome) but if it's handy, or not but I just fancy it, then I will.

One thing that did used to happen on here quite a lot, and was worrying to me (and others) but is happening FAR less now, I stress - is that a newbie would post an intro and include questions. 2 pages of Hello welcome - and no sign of any answer to their Q's. When they come back they have to plod through the 2 pages of (pleasant) nothing before someone says anything useful. By all means say Hello, nobody wants to stop that, especially if you are amongst the first 2 or 3 people to find that new person's post - but perhaps if it's already 4 or 5 'Hello' posts and no-one has answered the Qs yet and you can't, come back later when someone has, to add your welcome.

(Fraid 'you' had the reputation of being the 'There There, Dear' forum, very nice people, but not much actual help)

Personally I click on 'all unread' and if there are several pages and the Q's have been answered and there's plenty of hellos, I don't add a Hello cos there's no point. I don't believe people think 'She isn't very nice, because she didn't say hello to me' - do they?

I've always thought it was no bad thing actually, sort-of being at arms length from DUK. There's a lot of long-standing D's out there (some of whom are sorted and some who ain't) who aren't fans of DUK - either for the amount (%age wise in comparison to some other charities) apparently spent on Admin or for other reasons. As for me, I'm sometimes their greatest fan and at others their greatest critic. I joined in 1972 and FWIW I'm still joined LOL Bit like my relationship with the NHS really! I hope that DUK use attitudes of people who post here, to inform their perception of what people really think of them and the NHS treatments that we get for our D (or more particularly, often don't get) If you search the forum, there are very few links or refs given in answers to forum members, to DUK info to help their problems. Yet surely almost every Q a diabetic asks about their D, SHOULD be being answered by DUK ? - we know very well it isn't. WHY?

So - are we a resource of DUK - or are we independent? (apart from the platform being funded by them I mean) I think what we do do about publicising the place depends on the real answer to that one, doesn't it?

Long post, sorry. I had a lot to say ..... hope some of it is of use.
 
I think a chatroom proper would take posts away from the main forum and would itself be very clique'y. And would be near impossible to moderate. A spammer could quickly devastate it.

Rob

Other forums have very successful chatrooms, the knack is to make sure they are moderated well and only have it open at times when mods have the time to monitor them.
No they do not take away posts from the forum either. Chat is real time and when someones in a panic over something or just feeling down then the first place to look is the chatroom.
If the chatroom is only open to members then it can not be spammed 🙂
 
The forum does indeed have its own twitter account

@DSforumUK

DUK have recently directed someone needing help to their own website or careline. No mention of the forum. Do they actually know we exist or are we their poor relation I wonder ?

As said, there are always cliques on forums, and the St. Bedeia serves as a chatroom of sorts. I think a chatroom proper would take posts away from the main forum and would itself be very clique'y. And would be near impossible to moderate. A spammer could quickly devastate it.

Rob

DUK certainly do know we exist, so my meeting will be about how we can put things in place so that those responsible in the organisation promote us more equally with their other resources. I know some people prefer Facebook to forums, but I think it is a clumsy environment for the discussion of what may be serious medical issues - far more difficult to moderate and check validity of membership, or learn anything about background and medical issues before responding. On the forum it's easy to check back on a poster's previous history if they only post once in a while so you can more closely personalise a response to any new questions.

I do agree with what Rob says about a chatroom. It would be difficult to monitor, and as providers people may have expectations that it would be as safe an environment as the forum with equal levels of moderation. I think people use IM and Facebook for that type of chat anyway.
 
Sorry I haven't been about much lately.

I have fallen into the habit of putting posters and flyers up in appropriate places like dcotors and clinics and the local library. I also pop flyers into appropriate library books and any magazines I pass on, and have a few posters on notice boards at work.

My own front window is not exempt and I have a laminated poster up there too. As I live on a main road it gets a lot of attention.

I also carry a note pad and if I chat to anyone and it comes up in conversation, I give people details on jow to get onto our forum.

It would be nice if we got a mention in places like Balance, and I myself came here through a link on the DUK website.
 
ust to pick up on the 'There there' reputation. That's all that some people want and need. They may have all the info but ust need to be told they're not worthless.

Others want and need cold, hard facts. I feel we have enough members who are good at both.

As for DUK taking on board what's posted here. I know Joe Freeman pops in occasionally and does listen. Whether he's able to convey any of it to those in charge, I have my doubts. Big organisations rarely give their members any credit for being sensible unless the execs' jobs are threatened. We've all seen the official line on diet and testing but there's clearly no interest in what real diabetics find works for themselves because it doesn't agree with what the 'experts' have decided.

Maybe they could listen in for one day a month to catch the zeitgeist at ground level. If they realise we're not hanging on their every word and are in fact doing what we find works for us, they may examine their own policies and conduct some more studies.

But that won't improve what we do here, so maybe another discussion for another day.

Rob
 
+1 on the not finding it a closed-shop of a few personalities

Actually of the peeps who have responded if I though one existed I'd have put both Copepod and cherrypie *in* any core group.

I like the large number of people chipping in, general feeling of mutual support (regardless of type) and consistently good info. The lively banter type threads might seem a bit 'in crowd' to begin with but if we are concerned about that it is up to us to welcome/mention/reply to/affirm new voices so that they quickly feel part of the group. This is what happened to me when I joined.

The DUK FB page scares me. Some of the posts there suggest people are struggling along with all but no help, support or information from their clinics. Every once in a while I'll suggest someone checks out the forum, but I'm not sure if any ever do.
 
The DUK FB page scares me. Some of the posts there suggest people are struggling along with all but no help, support or information from their clinics. Every once in a while I'll suggest someone checks out the forum, but I'm not sure if any ever do.

They scare me too!!!
Plus, when I do reply to the posts, it takes an age to find them again, so now I don't bother much anymore. I have encouraged people on there to check the forum out too.
 
The DUK bit of Second Life is equally scary apparently Mike.

When DSF had the 'tropical island' in SL certain peeps used to go to the DUK place and put a signpost to the island in there, and sometimes 'pick up' people and whisk em off to paradise for cocktails LOL - DUK's area was never 'manned'.

I think DUK must have joined it because someone told them they ought to, but unless you have someone 'looking after' it, it's a wasted resource.

Sue is correct about chatrooms; we've sat up with various people till the early hours when they've accidentally shot Novorapid at bedtime instead of Lantus!
 
can I just say that when I first joined this forum this time last year I never felt that it was cliquey........... and everyone was very friendly and helpful. I don't know how I would have coped the the news that I had diabetes without you all. I am sooooo glad I found you 🙂

I agree with MACAST completly I dont think that this forum is cliquey if anything quite the opposite. Everyone is so friendly and helpful and for me that is its greatest strength of all. This is what makes this forum work where some other don't this forum gets used regulary so there is always some new threads to read. The support that is offered here is second to none. I have only attended one meet up so far and didnt find it clique at tall it is defintely worth making the effort if possible to attend one no where near as daunting as I thought it would be.

Other suggestions:-
Welcome pack would be an excellent idea
Chat room would be a good idea as lots of friendships have been established on this forum.
Posters in doctors surgery would be great. I found this site on the day I was diagnosed using a search engine.
Regulary mentions in Balance would be great
 
I have to say I don't have a bad word to say about the forum. It has been there with me every single day since diagnosis. It has now become part of life:D

I have received so much support and been provided with so much information. For me the last 18 months or so have been confusing with my diabetes not being normal (so to speak). I have to cope with floods and hypo's and have had to face negativity from my own nurse on occasion, but the forum gave me the strength to stand my ground - and fully supported me when I was in hospital - and I felt everyone was waiting with me to find out what the real cause was - I didn't feel alone - and I wouldn't have done without you all.

I also started the WLG last year and through it have met some fantastic people online. The WLG is open to anyone and certainly doesn't feel cliquey to me! There is also no pressure - if you decide you want to drop out the WLG for a bit (and we all do) then that doesn't stop you still posting on the rest of the forum.


I do know what people mean by feeling left out sometimes - I too have felt on occasion that I am being ignored (even at times in the WLG) if honest, but I do know this isn't anything personal and it isn't really people deliberately ignoring- its just about people and their time - it most probably is that people are not on for a while, and if they are only have time to say something quickly. So I have come to accept that sometimes I will be acknowledged and sometime I won't, but I do know that you are all there.

I also like the fact that we can talk about other stuff besides diabetes - I often log on to see the next saga in a story that is unfolding, or the next groaning joke!

So for me the forum is great -and I don't think for me anything really needs to change....except for Northerner to let us know when he is going on holiday so that:
a) we don't worry about him and
b) we can start planning the party!!!:D
 
The DUK bit of Second Life is equally scary apparently Mike.

When DSF had the 'tropical island' in SL certain peeps used to go to the DUK place and put a signpost to the island in there, and sometimes 'pick up' people and whisk em off to paradise for cocktails LOL - DUK's area was never 'manned'.

I think DUK must have joined it because someone told them they ought to, but unless you have someone 'looking after' it, it's a wasted resource.

Sue is correct about chatrooms; we've sat up with various people till the early hours when they've accidentally shot Novorapid at bedtime instead of Lantus!
DUK had gone down the usual of building some kind of presentation area and just leaving it with minimal support. I never actually found either the DUK area or the DSF areas in SL because they were gone by the time I was diagnosed (I?ve been in SL for 5 and a bit years so?).

Unfortunately, if you want something to work, in SL as anywhere, you have to build a community as well as have something for someone to visit. Which means having people there, holding regular events and competitions as well as having somewhere for people to gather and talk (and possibly build).
 
Sorry but there is an undertone of 'clique' amongst the forum I don't think it's an intentional thing though and it's harder to spot for the older members but newbies do pick up it with ease and make it difficult to join in for them... I've been here for almost 18 months, I've never posted in the St Bedia thread because I feel an outsider butting in on somebody else's conversation...

I think a chat room needs to incorporated as this helps to overcome the above, with instant access to members in a more natural way, it's not as problematic has some seem to think... So shouldn't be ignored any longer

I think DUK can be more active in promoting us, they carry a lot more clout when it comes to promoting a forum within a doctors surgery or hospital clinic as a lot of these will have a mistrust of the quality and safety of any forum, so if the DUK is telling them we're a kosher and safe forum to belong to then doctors and hospital are more likely to promote us..

There is one thing that we are all forgetting though, is the inclusion of the forum web address as part of your email signature... And all you then need to do is delete it if it's not appropriate for the email you'll sending..
 
I have read through the posts and I feel the same way as Cherrypie and UKjohn. I have had difficulty in the past with some of the posts( this has happened before with a big blowout from a member who rarely posts now, but said she is on FB) I understood how she felt and did sympathise with her, but then again it is a diverse group of people, with different strenghts and personalities, and some are more 'out there' I have sat back and watched names comes up and floods of people post, other people hardly get a look in, this has happened a lot. It's a difficult one, sometimes things go wrong in all our lives and it's hard to feel good about ones self and we may look at things differently.
As for the forum layout, you can see straight away whats been posted and by who, where as on other sites, you can't and days later you may get an email!
As for posters and cards, I would certainly be interested in them, as I work in a Pharmacy and they would be a huge asset.

Forum meets, just sitting there in a pub is just not for me, I can't think of anything worse than sitting there watching people drink after drink after drink. If someone would like to suggest a more active meet, then that would be great and much more interesting to me( Unfortunately I am not an organiser of other people/events😱) This is just MY point of view and not intended to cause any anger or upset 🙂

I do like Off the subject and the jokes😛

Best wishes to all Sheena
 
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