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Aaarghhhhh!

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Kei

Kei

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
See - I really didn't believe the doctor the other day when he said the fasting blood sugar level meant J was fine...

He has still been peeing/drinking a lot. His drinking has steadily increased and his peeing has become so often it's stupid.

After swimming this evening I was testing F's blood and J asked if I could test his too. I did and it showed up as "HI" on the monitor. We washed his hands again and did another test ... "HI" again. Blood ketones came up at 0.9, then half an hour later urine ketones came up at 4. (Urine ketones can apparently show higher earlier than serum ketones - I've been reading the Ketostix pack! 😛)

I phoned the children's ward and they told me to take him into the Children's Assessment Unit at the hospital. DH has taken him there now, while I look after the girls.

It seems he might be diabetic after all....
 
Aw Kei, so sorry to hear the news, hope he is OK. It is good, at least, that you had the capability to perform the tests yourself and get him the attention he needs. Take care.
 
Hi there Kei,

Really sorry to hear that this might be turning out to be diabetes. I hope you get good medical attension and your littlun gets stabilised.

I know there can probably be little to comfort you about this, but reading what has happened I am (sorry to hear the little one is poorly) pleased to read the dagnosis has come before a really bad DKA.

I hope you post soon but no doubt you will be taking time to absorb the news and adjust. Thinking of you and your hubby and the kids.

Lots of love
Louisa xx
 
Sugarbum said:
I know there can probably be little to comfort you about this, but reading what has happened I am (sorry to hear the little one is poorly) pleased to read the dagnosis has come before a really bad DKA.
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Oh that's why I phoned the hospital straight after the blood/urine tests this evening. DD went into really awful DKA so fast, and I'm determined not to let it happen to J too.
 
Really sorry too :( At least, and it's no comfort, you're on the ball and able to test levels and such before it got too bad...On CWD there is a family who's 2 children were diagnosed 10 days apart and their third child's levels are looking a bit suspect also. It's madness and it must be so hard to comprehend when it's your second or third child diagnosed.

Let us know how they get on and if you need a chat or anything i can send you my number 🙂

x
 
Oh my goodness. You as a mum knew something was wrong no matter what the doctor said. Well done for acting so fast We are all here for you. Thinking of you all.

x
 
I dont know what to say. This is just so awful for you all. Please let us know for definate when you have heard from the hospital etc. Sending you lots of love and hugs to the little one. Bev xxxx
 
DH has just sent a text saying they have done urine samples and are now doing blood tests. The hardest thing is being here, not knowing what they're doing there!
 
Big Hugs - good on you for testing and being aware of his symptoms. That must have been a real fright for you. Hope they get him sorted out quickly
 
J's staying in hospital overnight so they can keep an eye on him. It looks like I was right - type 1 diabetes again. DH is staying in with him, and he'll be seen by the diabetes nurses in the morning.
 
Kei said:
J's staying in hospital overnight so they can keep an eye on him. It looks like I was right - type 1 diabetes again. DH is staying in with him, and he'll be seen by the diabetes nurses in the morning.
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So sorry to hear it Kei. Try and get some sleep yourself, I know it must be difficult.
 
Thanks for all the support, folks. It's what keeps us going in times like this. BIG enormous hugs to everyone!

I have to say though, my kids have great timing. F held on and didn't go into DKA till the first week of the summer holiday last year, so she had 5 weeks to get used to it all. J has managed to go in just as half-term starts, so we'll have a week to acclimatise him. :D Look on the bright side, eh?
 
Kei said:
Thanks for all the support, folks. It's what keeps us going in times like this. BIG enormous hugs to everyone!

I have to say though, my kids have great timing. F held on and didn't go into DKA till the first week of the summer holiday last year, so she had 5 weeks to get used to it all. J has managed to go in just as half-term starts, so we'll have a week to acclimatise him. :D Look on the bright side, eh?
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People will start wondering where you are taking them on holiday!😉
 
DH phoned. They've given J 3 units of Novorapid, and he's down to 19 now, sleeping and being monitored. Should be discharged in the morning once he's seen the diabetic nurses. Apparently he wobbled a bit when told he was definitely diabetic, but was absolutely fine for his injection. My brave little man! 🙂
 
DH is amazing! Apparently he told the nurses to do the injection in J's left leg, so that in the morning they can use his right leg ... then he'll be injecting in the same side as his sister, and we won't get muddled! What a thing to think of in that situation! LOL! Calm and collected... 🙂
 
Kei said:
DH is amazing! Apparently he told the nurses to do the injection in J's left leg, so that in the morning they can use his right leg ... then he'll be injecting in the same side as his sister, and we won't get muddled! What a thing to think of in that situation! LOL! Calm and collected... 🙂
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That's a cool head in such difficult circumstances Kei! So good to hear that J was able to have his injection without fuss. Hope you all get some rest tonight after such a difficult and worrying time. You know we'll be here for you when you need us.
 
Kei

I am so sorry that the diagnosis for 'd' is positive for J. But thank goodness you were so on the ball! Thanks to you, your precious child did not go into dka.

DH did well re thinking about J and F having their injections in the same leg. Good thinking!

Do please let us know how things are going. I am sure I speak on behalf of everyone on this forum when I say "thinking of you all and sending strength".
 
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Oh bless, you all sound so amazing and together....How old is your little one? It must be so mind boggling at the moment but we're all here for you.

Maybe later, when things are 'settled' if you ever need to be put in contact with other families that have more than one child diagnosed let us (Adrienne, Bev etc ) know as we can contact them for you.
x
 
Your children sound so amazing and brave. Good to hear that he is ok having the injections. Was thinking of you all last night. This forum so is great. It gives such support.
How strange about their timings!
 
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