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Time to be honest...

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Wife_Mother_Diabetic

Wife_Mother_Diabetic

New Member
Relationship to Diabetes
Type 1
Evening!
I was diagnosed with Type 1 nearly 8 years ago, just after I turned 21. I don't like it, as I'm sure no one does, but I mean I really don't like it. Every morning that I wake up I wish I hadn't. My friends and family seem to be more concerned about the condition than I do. I had poor control, then great control and now poor control again. I've just given up, and I'm not sure I even want to try anymore. It's really getting me down and I don't have anyone to talk to.
Sorry if this upsets or offends, I purposely signed up to this forum site so I had somewhere I could be honest.
Claire
 
Hi Claire,

Please don't give up, you have many good years ahead of you. Now that you have found this forum feel free to rant & rave, this place is not just for advice but as a support group to aid, encourage & have some fun along the way.
 
Wife_Mother_Diabetic said:
Evening!
I was diagnosed with Type 1 nearly 8 years ago, just after I turned 21. I don't like it, as I'm sure no one does, but I mean I really don't like it. Every morning that I wake up I wish I hadn't. My friends and family seem to be more concerned about the condition than I do. I had poor control, then great control and now poor control again. I've just given up, and I'm not sure I even want to try anymore. It's really getting me down and I don't have anyone to talk to.
Sorry if this upsets or offends, I purposely signed up to this forum site so I had somewhere I could be honest.
Claire
Click to expand...
Be honest, be blunt, I know where are at emotionally. Have you had any medical support for emotional well being?
 
Welcome to the forum, glad you found us. You have come to just the right place to vent, we all understand where you are coming from. Everyone gets burnt out with it at some point, you need to find a way to get out of the hole. Talking on here is a great start, with loads of friendly advise and also a great laugh when needed.

what insulin regime are you on? What is your local diabetes team like?
 
Hello & welcome ! I don't know if you have tried a Freestyle Libre. That is a continuous blood monitor. It runs 24hrs & really teaches you what affects you bg. Being T1 is very stressful & right pain at times. I am mad as I was looking forward to my 50yr of T1. I give talks to different groups inc Drs. Really good luck & keep asking pls 🙂🙂
 
Hello Claire and welcome. I'm glad you found us, we're all about support here and will do our best to help. Everyone gets periods when it's all too much and we want out and we understand where you're at. You've made a good move in joining a forum where you can find like minded souls and shouldn't feel bad about having a good vent. What is your diabetic support like? Have you been able to discuss your feelings with them? Having good medical support is vital, especially when you're struggling, so these questions are important.
 
Hi Claire - nobody here is going to criticise you so yes - it is indeed a place where we can all be blunt. I agree you need some medical support, but it doesn't just appear - we have to ask for it by seeing our GP and preferably your team at the hospital too - and telling them both quite frankly as you have here, exactly how you feel.

May I also ask - let's assume you aren't diabetic any more for this dream - what do you see yourself doing? (apart from making a bonfire of all the paraphernalia and doing a war dance round it I mean - cos we'd all like to do that at times!)
 
Offend?? What kind of person would be offended? Hello and welcome from a T2 who's two years in. I'm sorry you're finding it so difficult.
 
Hello Claire Welcome. It sounds like you are in a dark place right now rather than just being a little bit low like can happen to most of us at times. I hope that soon We can help you feel strong enough to speak to your GP and diabetic team. I know that must seem a big step for you to contemplate right now.
I too am sorry you are finding things so difficult .
 
Hello Claire, time for me to be honest too. I, we, all of us have bad control at times.This is just what the condition does to you. Nobody can make you want to carry on. This is somewhere you have to get to by yourself. The thing is though you are wrong in thinking that you have no one to talk to. Everybody on here will listen and talk to you. We all understand some of what you are going through. We will never judge or talk down to you. We are all diabetic and trying to get along the best way we can. Just like you. I have 'liked' your post. This is because I hope posting it here is the first step on a path of you wanting to try and achieve better diabetic control. I will and we will (forum members) offer you whatever help we can. You are not and will never be alone in this.
 
Wife_Mother_Diabetic said:
Evening!
I was diagnosed with Type 1 nearly 8 years ago, just after I turned 21. I don't like it, as I'm sure no one does, but I mean I really don't like it. Every morning that I wake up I wish I hadn't. My friends and family seem to be more concerned about the condition than I do. I had poor control, then great control and now poor control again. I've just given up, and I'm not sure I even want to try anymore. It's really getting me down and I don't have anyone to talk to.
Sorry if this upsets or offends, I purposely signed up to this forum site so I had somewhere I could be honest.
Claire
Click to expand...
Hi Claire, welcome to the forum 🙂 Absolutely no need to apologise, I'm sure everyone here is with you on this one - even if you have great control all the time it's something you don't escape from, so coming here to let your feelings out is a very good move 🙂

What insulin regime are you on? Have you been on a diabetes education course? Do you know any other Type 1s? It can make a real difference to meet others in the same situation, because it's something that's virtually impossible to explain to those who don't have to deal with it. Try not to become overwhelmed by it all, just start back, as you have by posting here, with baby steps - don't try and put everything right all at once. What are your main concerns, or what pees you off most?
 
Welcome Claire. I think you'd have to be crazy to like having type 1!!! I'm Mum to a type 1 teenager, diagnosed aged 4, and can completely empathise with how you feel. It's a condition where there are no prizes for hard work and getting everything right, but dire consequences for making mistakes or taking your eye off the ball. All stick and no carrot. Relentless. But nevertheless, since these are the cards we've been dealt, we have to do the best we can, and try to fit "good" diabetes management into the daily routine without allowing it to loom too large in our lives.
It's great to talk to others who "get it" and offload 🙂. Also, no matter how knowledgeable you are, I recommend you get and read a copy of the Ragnar Hamas book "Type 1 Diabetes in Children, Adolescents and Young Adults". This book is SO helpful if you need to reboot your self-care, and it's so positive and uplifting.
 
Welcome Claire.

No one wants to have diabetes, and this forum is a good place for lots of help, a good rant, a moan, whatever you want. I suspect that all of us have times when things go haywire, I know I do, and there are times when I just want to cry ( and do) . Som come to the forum and say what you wasn't to

As Jenny said it would be good to get some practical help. Tell your diabetes team exactly how you feel.
Tell your GP and ask for help.

Can you think of one thing that would help things improve. Just choose one small thing that you could do. This could be just testing before meals.

People on here can help with lots of ideas to try. Just keep in touch.
 
Hi Claire and welcome. It's good to have a place to rant, to say "I've done well" and sometimes to just type up your thoughts even if you don't post them. I like everything others have said, and hope the comments help
 
Thank you to everyone for all you comments and advise.

My current HbA1c is 10.9%, at my worse I was 11.9% and at my best 5.9%...

My regime is two injections of Tresiba and then Novorapid with every meal/snack.

I went on a DAFNE course in July 2013 when my HbA1c was around 10% and by the October I was 6.1 and the following March when I conceived my little boy I was 5.9%.

Part of my struggle is not really caring about myself, I'm always putting everyone else first and quite often forget to inject. The hustle and bustle of life is a huge distraction, one that I let happen and then blame for my diabetic mistakes. I have had very good control before and the fact that good control isnt happening in a matter of months again this time is leaving me feeling so fed up!

I know one thing, I am getting sick and tired of pricking my finger and injecting myself and being left with little marks and scars... My white top had a lovely red dot on it the other day!!!
 
Hi Claire
you'll find this a great place to pile in to. Lots of help and support from people who genuinely do care - even tho you'll not have met each other.

Yesterday I forgot to inject and take my other meds...stupid thing to do, I got distracted by putting the bins out, and I felt like shi...awful mid way through the day. Anyway, I got sorted and here I am but ...had it not been for the people here I would have tried (and most likely failed) to 'tough it out'. Please, start being a bit selfish and look after yourself. Don't be a daft arse like me and forget to inject - that'll only make you feel worse. You've had good control before and you'll get it back again, just maybe not as quickly as you did before because things are a bit different now, but it will happen. Take your time and it'll be fine. This forum is always here if you want to ask a question, have a rant, post a picture, read @Diabeticliberty's awful jokes, have a laugh or get virtually blotto for no money at all in the virtual pub (they serve non-fattening Carb free virtual food too!)

As for the red dot on your white top ...it's only a top. 🙂
 
I know what she means Jonsi - it's Sod's Law - it simply never happens when you wear a blood red or black top - only LIGHT coloured stuff it shows up on - and won't come out of! Same as having kids - they only dribble chocolate on your best outfit, never when you're wearing gardening clothes.

However it isn't really the end of Life as we know it, but knowing that just doesn't help at all when you're still in a grump about it.

Think of your little boy mate - if you aren't operating at 100% - what use or help can you be to them? So much easier to deal with all that life throws at you, if you are well in the first place. You simply HAVE to do it Claire !

I'm not asking you to LIKE it - you don't need to - but D is soooo much easier to actually live with long term if you simply accept that it does place some tramlines in our path, that we all simply have to remain firmly on for as long as possible every day - cos if we step off them for very long - the only person that suffers is simply, ME.
 
trophywench said:
Same as having kids - they only dribble chocolate on your best outfit, never when you're wearing gardening clothes
Click to expand...

I know what you mean. Only last week my lad brought his dinner up on my suit...
.
.
.
Trouble is he's 30 😛
 
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