Think im just needing to talk

[gillrogers]

So as a few of you know last year i was fighting my anxiety demons over my type one diagnosis and a fear of insulin. Finally managed to start getying more confident and recognising basal changes as oppsed to bolus ratio changes , when my husbands mild asthma kick off violently for no apparent reason resulting in 2 emergency trips by ambulance with them.almost loosing him on the 2nd trip. Theyre now looking at a pssible terminal condition which we have to wait for a test later on in the month for. Needless to say Im a mess, everything has gone out the window, amd of course its hitting my diabeyes. Im upping my basal as needed but very inaccurate sensor readings of 2mmol higher than i actuslly am arnt helping. Think as well the carb ratios are changing but atm i cant work out what is what. Im terrified of my husband needing help when ive injected and not eaten as has almost happened.

 

[Natalie123]

That sounds really tough @gillrogers. What are your diabetes team like? Do you trust them and get on well with them? Or your GP if you're not under a hospital team? It sounds like you need a little bit of extra support. When my anxiety has been affecting my diabetes, I have asked for a bit of extra support and my diabetes nurse has checked in on me by phone regularly to give me a bit of extra help until I felt able to cope again. Hopefully someone else will have some better suggestions than mine!

 

[mashedupmatt]

Sorry to hear of the really tough time you've been have having @gillrogers - if you are getting inaccurate sensor readings that doesn't help, but remember to finger-prick test if the numbers don't add up to how you are feeling - as @Natalie123 has said it is worth trying to speak to your specialist Diabetes team, or failing that, you can always call the Diabetes UK Helpline who can offer more specific help - the number is 0345 123 2399

 

[saffron15]

@gillrogers I was going to leave an emoji but didn't know which to choose. What a very difficult time for you both. At a time when you want to be strong mentally and physically for your husband you must feel knocked off course. Natalie's advice seems sensible. Don't hold back. It is important for both of you that your health is as good as it can be. I don't know the type of illness you fear (and I don't need to know) but there maybe a department or a charity that can offer support to both of you, separately or together. One of the difficulties maybe that you and your husband may have completely different strategies on coping. As far as practical advice for a type 1, the hospital team are likely to have all the skills you need but I assume your diabetic nurse at the surgery may be the best access point. Part of it will be who you trust most.
I hope you can obtain the advice and help you want from now on.

 

[silentsquirrel]

Perhaps keep an emergency pack of biscuits or two with your diabetes kit and/or in your handbag so if the worst happens you know you can eat speedily - one less thing to stress about?

 

[gillrogers]

Perhaps keep an emergency pack of biscuits or two with your diabetes kit and/or in your handbag so if the worst happens you know you can eat speedily - one less thing to stress about?

Thanks squirrel, ive got glucose tabs as ive a gluten intolerance and the fat in biscuits slows the release of glucose for me.

 

[gillrogers]

@gillrogers I was going to leave an emoji but didn't know which to choose. What a very difficult time for you both. At a time when you want to be strong mentally and physically for your husband you must feel knocked off course. Natalie's advice seems sensible. Don't hold back. It is important for both of you that your health is as good as it can be. I don't know the type of illness you fear (and I don't need to know) but there maybe a department or a charity that can offer support to both of you, separately or together. One of the difficulties maybe that you and your husband may have completely different strategies on coping. As far as practical advice for a type 1, the hospital team are likely to have all the skills you need but I assume your diabetic nurse at the surgery may be the best access point. Part of it will be who you trust most.
I hope you can obtain the advice and help you want from now on.

Thanks

 

[gillrogers]

Sorry to hear of the really tough time you've been have having @gillrogers - if you are getting inaccurate sensor readings that doesn't help, but remember to finger-prick test if the numbers don't add up to how you are feeling - as @Natalie123 has said it is worth trying to speak to your specialist Diabetes team, or failing that, you can always call the Diabetes UK Helpline who can offer more specific help - the number is 0345 123 2399

Yes i always double check with a stick test when ive got a sensor reading like this. I got my first libre2+ yrsterday so cant wait to try them.out as im fedcup with this inaccuracy. For almost two weeks i ran round thinking i was really doing well and had cracked it. Then i noticed hiw thirsty i was for no apparent reason. Did a stick test as a precaution as i do like my ready salted crispd at lunch thinkin g it was themand was 3 mmol higher than blood! Grrrrrrr.

 

[helli]

Thanks squirrel, ive got glucose tabs as ive a gluten intolerance and the fat in biscuits slows the release of glucose for me.

Maybe not biscuits but something that you can take with you and eat in case you need to leave after taking your bolus and before eating if you get called away at short notice.
Glucose tabs are important if you have a hypo but this is to avoid the hypo when you have Insulin on board with no food.

 

[gillrogers]

That sounds really tough @gillrogers. What are your diabetes team like? Do you trust them and get on well with them? Or your GP if you're not under a hospital team? It sounds like you need a little bit of extra support. When my anxiety has been affecting my diabetes, I have asked for a bit of extra support and my diabetes nurse has checked in on me by phone regularly to give me a bit of extra help until I felt able to cope again. Hopefully someone else will have some better suggestions than mine!

Thanjs Natalie, probably a good idea for sure. I have found a new friend in my village whos type 1 , has been for donkeys years and she takes things in her stride and shes been a big source of confidence boosting for me. She's aware of our situation. The intact she was there for me on that nearly fatal night . Tower of strenght for me but we did have this possible terminal question mark over our heads then. Im so strugglingvwith the thought of that being it.

 

[gail2]

@gillrogers dont know what to say apart from wot others have said Am sending you lots of love and hugs Keep posting if it helps you
take care
gail

 

[silentsquirrel]

Maybe not biscuits but something that you can take with you and eat in case you need to leave after taking your bolus and before eating if you get called away at short notice.
Glucose tabs are important if you have a hypo but this is to avoid the hypo when you have Insulin on board with no food.

Yes, I wasn't thinking of hypo treatment but something you can eat quickly if you inject and then need to abandon your meal.

 

[gillrogers]

@gillrogers dont know what to say apart from wot others have said Am sending you lots of love and hugs Keep posting if it helps you
take care
gail

Bless you Gail xx

 

[gillrogers]

Yes, I wasn't thinking of hypo treatment but something you can eat quickly if you inject and then need to abandon your meal.

Oooohhh sorry @silentsquirrel i get ya now lol. I could do a couple or 3 packets of crisps