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Letter to Dr Phillip Lee,MP

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

test_positive

New Member
Relationship to Diabetes
Type 2
I woke up this morning still feeling annoyed about this guy's recent comment about diabetics. So I sent him this email copying my MP. Wonder if I get a response?

Dear Dr Lee, MP,

I was horrified by your recent comments regarding those of us with Type 2 Diabetes. Even more so when I learned that you are a GP. As I am sure you now realise, your comments were completely misinformed and you unfairly encouraged prejudice against people with a disease ? that you as a GP are supposed to support. Whilst I say I am sure you realise how wrong and misjudged your comments were, I note that there is no mention of them on your website and no retraction. Indeed there is the comment from 2007: ?More than 1.5 million Britons now have Type II Diabetes. This is thought to be a direct consequence of poor choices in diet and diminishing levels of exercise.?

I was diagnosed with Type 2 Diabetes this year at the same age as you ? 42. Please don?t believe that it could not happen to you. I have never been overweight, never smoked, exercised regularly for many years and I have always been careful with what I eat. But in your misinformed comments you seem to think that I should ?pay for [my] drugs at cost, in that way you would be attaching a consequence to lifestyle choice." I have found it hard to come to terms with my chronic disease ? in part because of the common misrepresentation of those with Type 2 Diabetes as being fat, lazy, stupid people who don?t care for their health and who have brought the disease on themselves ? a ?lifestyle choice? as you call it. When I was diagnosed, people told me I must have been eating too much sugar! Please look at the images in the media that go along with your comments to see the stereotype that is out there and to see what your comments help to encourage. You are stigmatising a group of people who as a GP you should know more about.

As a GP you should know that although the understanding of Diabetes has progressed a long way in recent years and shown that it is in fact a set of many diseases with varying causes, true cause and effect is still largely not understood. It is now thought that most, if not all, of the Diabetes diseases have a genetic component. There is no evidence that eating doughnuts causes Diabetes as you imply.

Considering your argument further ? because I realise you were using those of us with Type 2 Diabetes as an example ? you appear to think that the NHS should be making decisions about who is ?worthy? to treat rather than simply treating people who are unwell. This argument is unsustainable ? where does it end? With committees reviewing cases to determine whether or not individuals are worthy of being treated? If you were unfortunate enough to get hit by a car when crossing the road because you didn?t take enough care, should you pay for your own treatment? Should those who have lung cancer and have smoked be denied NHS treatment? What about someone who contracts malaria whilst on holiday? Or someone who contracts HIV/AIDS from unprotected sex?

Your primary concern appears to be the cost of the NHS. You, of course, know the implications of denying medication to those of us with Type 2 Diabetes. Without control of blood glucose, we are susceptible to complications such as heart disease, blindness, neuropathy and amputations. These complications are the true cost (both financially and in terms of impact on people) of Type 2 Diabetes. By denying medication, you will increase the level of these complications. Do you then propose that these individuals are not treated on the NHS for these complications? Your proposal would have the effect of increasing overall cost ? in particular to the lives of the individuals and their families.

I understand and share your concern about the increasing burden of Diabetes on the NHS. And so I would ask you to be truly radical instead of falling back on stereotypes and poorly thought-through arguments. The NHS gives very poor advice to people with Diabetes ? advice which actually exacerbates their condition. By ignoring the NHS advice and following advice from web forums such as www.Diabetes.co.uk and www.eattoyourmeter.org and sites such as www.bloodsugar101.com I have managed to get my blood glucose under control and down to levels of those without Diabetes. This is achieved through careful management of carbohydrates in my diet and following a ketogenic diet which is high in fat. It has also had a beneficial impact on my lipid profile by dramatically reducing my triglyceride level. But the NHS advice is against this diet (and they are unable to provide evidence for their claims) and encourages those with Diabetes to eat substantial amounts of carbohydrates in a ?healthy? diet. The level of carbohydrates that the NHS recommends are very unhealthy for those with Diabetes and lead to the awful and debilitating (and costly!) complications. I would ask that you take a truly radical approach to Diabetes care and challenge the status quo of current NHS care which I believe leads to substantial negative impacts on individuals and increased cost for the NHS. On the above sites there are many, many examples of people who followed NHS advice to their detriment but who have managed to positively impact their health by going against NHS advice. Please take time to find out more from the sufferers of this disease.

A debate is needed on how we, as a country, are going to pay for our health in the future. But I expect MPs (and GPs) to help lead an informed debate rather than one based on prejudice and misinformation.

Yours sincerely, etc.
 
Very well put, T-P - hope you get a response, or that at the very least it makes him think a bit harder before opening his mouth in the future 🙂
 
Very well written. I love it 🙂
 
Really well written, coherent argument. I hope you get a well reasoned response to it.
 
Great letter!

I ain't T2, but I'm gonna say Thank You anyway.
 
Excellent letter, lets hope it make him realise what a fool he was making such sweeping statements about diabetics.
 
it would have been better without the irrelevant low carb ranting in the penultimate paragraph.
 
it would have been better without the irrelevant low carb ranting in the penultimate paragraph.

Not 'ranting', but the poster's personal experience of something that has worked for them, and which contradicts the 'official' advice given to many people. Given the GP/MP's apparently poor knowledge of T2 it doesn't go amiss to educate him that not everyone is the same, or 'textbook' since he seems to tar everyone with the same brush.
 
Not 'ranting', but the poster's personal experience of something that has worked for them, and which contradicts the 'official' advice given to many people. Given the GP/MP's apparently poor knowledge of T2 it doesn't go amiss to educate him that not everyone is the same, or 'textbook' since he seems to tar everyone with the same brush.

The penultimate paragraph is ranting and its irrelevant to the main thrust of the letter about misconceptions about the CAUSES of Type 2 diabetes. Suddenly the writer goes off on one about the dietary advice given to diabetics.
Its the kind of thing that will lead to the letter being just brushed aside.
 
I suspect the OP is referring to the 'lots of starchy carbohydrate with every meal and no need to test' advice. I'm not sure there are many here who would think that is a particularly successful approach.

In the context of a letter concerning misconceptions about T2 and the horrendous personal and financial cost of treating complications it seemed fair enough to me.
 
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This needed to be said. The man may have a doctorate in medicine, but this apparently doesn't exempt him from being a pillock!
Almost my entire family are diabetic, my brother and sister from early childhood, (my brother was BORN with it). Tell me how it has become THEIR fault they have this condition. Genetics plays the biggest part in deciding who gets diabetes.
When I was diagnosed, I weighed 11 stone 4 lbs, I am 5' 10", played football until I was 37, and have cycled since the age of 4. I commuted by bicycle for 25 years, I still belong to a cycling club and regularly cycle 60+ miles on a Sunday, and I STILL got diabetes at 49.
The inference is that I am responsible for developing the disease. HOW?
A chap I worked with weighs 23 stone, eats all the rubbish food he can shovel into his mouth, smokes, drinks and takes no exercise. He remains non diabetic at 53! He does however have heart disease, chronic arthritis due to his weight, sleep apnoea, poor circulation, ulcerated skin and a myriad of other health problems. He obviously isn't considered a burden on the NHS as he doesn't have diabetes!
Kelly.
 
The inference is that I am responsible for developing the disease. HOW?
Kelly.

No that is not the inference to be drawn from this callous MP's comments.You are a Type 1 Diabetic, "Doc" Lee was talking specifically about T2 diabetics with a "Lifestyle" condition who,in his view, should be made to pay for their prescriptions if they fail to get it under control.
That's the context of this letter - out of control T2s should be forced to pay for their treatment because its, allegedly, a lifestyle condition they have brought on themselves.
 
This needed to be said. The man may have a doctorate in medicine, but this apparently doesn't exempt him from being a pillock!
Almost my entire family are diabetic, my brother and sister from early childhood, (my brother was BORN with it). Tell me how it has become THEIR fault they have this condition. Genetics plays the biggest part in deciding who gets diabetes.
When I was diagnosed, I weighed 11 stone 4 lbs, I am 5' 10", played football until I was 37, and have cycled since the age of 4. I commuted by bicycle for 25 years, I still belong to a cycling club and regularly cycle 60+ miles on a Sunday, and I STILL got diabetes at 49.
The inference is that I am responsible for developing the disease. HOW?
A chap I worked with weighs 23 stone, eats all the rubbish food he can shovel into his mouth, smokes, drinks and takes no exercise. He remains non diabetic at 53! He does however have heart disease, chronic arthritis due to his weight, sleep apnoea, poor circulation, ulcerated skin and a myriad of other health problems. He obviously isn't considered a burden on the NHS as he doesn't have diabetes!
Kelly.

Wow, we are very similar Kelly. I also got diagnosed aged 49, a week before I was due to run a marathon and after regularly running marathons and half marathons for nearly 30 years. I am currently 11st 4 and am 5' 9", although I was 8st 4 at diagnosis due to severe DKA. Many of my peers lead far less healthy lives yet remain (for now) problem free.

This is the whole point really - you can't single out any particular disease and start penalising people for developing it, it's impossible. Phillip Lee suggested he made the statement in order to provoke a debate, but it's a complete non-starter as it would be impossible to implement. Even if it were, people who couldn't afford treatment would simply not be able to look after themselves and would develop complications - what would he propose happens to these people?
 
No that is not the inference to be drawn from this callous MP's comments.You are a Type 1 Diabetic, "Doc" Lee was talking specifically about T2 diabetics with a "Lifestyle" condition who,in his view, should be made to pay for their prescriptions if they fail to get it under control.
That's the context of this letter - out of control T2s should be forced to pay for their treatment because its, allegedly, a lifestyle condition they have brought on themselves.

Not a type 1. The medical team at my hospital had me diagnosed as type 2, then changed it to type 1.5 LADA. They still aren't sure, but whatever I am, I am stable, the medication along with careful monitoring is keeping me well.
Kelly.
 
Wow, we are very similar Kelly. I also got diagnosed aged 49, a week before I was due to run a marathon and after regularly running marathons and half marathons for nearly 30 years. I am currently 11st 4 and am 5' 9", although I was 8st 4 at diagnosis due to severe DKA. Many of my peers lead far less healthy lives yet remain (for now) problem free.

This is the whole point really - you can't single out any particular disease and start penalising people for developing it, it's impossible. Phillip Lee suggested he made the statement in order to provoke a debate, but it's a complete non-starter as it would be impossible to implement. Even if it were, people who couldn't afford treatment would simply not be able to look after themselves and would develop complications - what would he propose happens to these people?

I have also increased in weight since diagnosis. Do I blame the medical team for making my condition worse, after all, it's their rules I am playing the game by?
I'm glad this particular doctor isn't my G.P., he wouldn't be for long if he was. As an M.P. and a G.P., he isn't doing at least one of his careers justice.
Kelly.
 
I have also increased in weight since diagnosis. Do I blame the medical team for making my condition worse, after all, it's their rules I am playing the game by?
I'm glad this particular doctor isn't my G.P., he wouldn't be for long if he was. As an M.P. and a G.P., he isn't doing at least one of his careers justice.
Kelly.

I'd say both :(
 
Personally I think the letter was very well written and certainly dealt with all of my frustrations as a type 2.

I dont see that there is anything wrong at all with the last paragraph - not ranting in my opinion at all - and even if it was, surely Test Positive has the right to say what he wants to in his personal letter.

I think we are getting off the point that TP has taken a very positive step towards standing up to this MP/GP who is giving out the wrong stereotypical view to those who are not diabetics.

I would love to take this GP/MP on my training and diet regime each week - and lets just see how long he lasts. I also disagree with the way the NHS tells you to treat your diabetes.

Very well said TP - and thank you for taking a stand against Dr Lee. I would be interested in hearing of any response you may get.🙂
 
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