is it just me!!

[Rick43]

why do people assume it's easy changing your mindset with regards to living with diabetes when you first get diagnosed.

when you have porridge (you hate porridge) for breakfast, as its the only cereal that doesn't contain sugar, and they say that they can't see an issue with this as they have porridge every day

when you manage to get your blood sugar levels down to 7.9 for the first time in 22 days and they can't understand why your happy and they tell you it should be at 4.9.

when you get overwhelmed by all the changes you have to make to bring your blood sugar levels down, yet it still isn't good enough.

is it just me

 

[Ljc]

why do people assume it's easy changing your mindset with regards to living with diabetes when you first get diagnosed.

when you have porridge (you hate porridge) for breakfast, as its the only cereal that doesn't contain sugar, and they say that they can't see an issue with this as they have porridge every day

when you manage to get your blood sugar levels down to 7.9 for the first time in 22 days and they can't understand why your happy and they tell you it should be at 4.9.

when you get overwhelmed by all the changes you have to make to bring your blood sugar levels down, yet it still isn't good enough.

is it just me

No it’s not just you,
I think we all get it from friends , family and others at times and you are not alone in finding it annoying to say the least, esp if they have little clue about diabetes, which I find is often the case.
According to my dad I’m stuffing my face morning noon and night , the reality is unless I am not hungry which is rare I have breakfast and dinner , I only have lunch if hungry which I am usually not and sometimes a snack usually some walnuts before bed if my BG level isn’t high enough.

I guess your having porridge because it’s quick and easy , why not have a look on our https://forum.diabetes.org.uk/boards/forums/recipes.21/
And
https://forum.diabetes.org.uk/boards/threads/what-did-you-eat-yesterday.30349/
Threads to see if you can find something suitable that you like.

 

[mikeyB]

Your journey, your life, Rick. It’s those little triumphs that keep us going. That’s why a lot of folk with diabetes have an inexplicable grin on their face at times when they wake up on 5.2, or discover they’ve lost 4lbs in weight. It’s all wins, and nobody understands properly. Not the work involved, not the self discipline.

That applies to doctors and diabetes nurses too, it’s always not good enough for some reason. It’s only on here you get congratulations for your efforts, because we know it’s a struggle to begin with.

Keep up the good work, and ditch the porridge. Couple of hard boiled eggs, couple of slices of ham, pint of coffee, and there’s your brekkie. Zero carb, as near as dammit.🙂

 

[SB2015]

why do people assume it's easy changing your mindset with regards to living with diabetes when you first get diagnosed.

when you have porridge (you hate porridge) for breakfast, as its the only cereal that doesn't contain sugar, and they say that they can't see an issue with this as they have porridge every day

when you manage to get your blood sugar levels down to 7.9 for the first time in 22 days and they can't understand why your happy and they tell you it should be at 4.9.

when you get overwhelmed by all the changes you have to make to bring your blood sugar levels down, yet it still isn't good enough.

is it just me

It is because unless people live with this condition day-to-day they just don’t understand how difficult it can be.
So from someone who does understand, well done on getting your level down to 7.9. Having done that you can do it again. It does require lots of changes to diet/exercise but the important thing is to work on these and find things that work for you and that you can sustain.

There is plenty of help available on here from people that do ‘get it’. There are also loads of threads on the forum with lots of useful ideas. Take a look around, stay in touch and keep asking questions.

 

[leonS]

I like porridge, but some fool wants me to make it with skimmed milk and not water and NOT to put salt in it!

There are alternatives too - so good luck with a not easy task!

 

[everydayupsanddowns]

why do people assume it's easy changing your mindset with regards to living with diabetes when you first get diagnosed.

when you have porridge (you hate porridge) for breakfast, as its the only cereal that doesn't contain sugar, and they say that they can't see an issue with this as they have porridge every day

when you manage to get your blood sugar levels down to 7.9 for the first time in 22 days and they can't understand why your happy and they tell you it should be at 4.9.

when you get overwhelmed by all the changes you have to make to bring your blood sugar levels down, yet it still isn't good enough.

is it just me

Sorry you’ve had to endure some of ‘those’ conversations 🙄

Sometimes people think they are being helpful and supportive, but lack the empathy and sensitivity to hear their own advice from another’s perspective.

Try not to take it to heart and celebrate your progress. Improvements in BG are best done gradually (it causes far less stress on the body) and only you can define a ‘low spike’ diet that is sustainable and suits you - because at the end of the day it’s only you that knows which things you need to keep as occasional treats (despite the BG upheaval), and which things you are prepared to drop altogether or reduce to almost nothing for the sake of better levels.

There’s more to food than BG perfection - and I think perfection and perfectionism can be really problematic for long-term mental health.

Stick at it. Give your tastebuds time to adapt. And be proud of what you have already achieved.

 

[SueEK]

Hi Rick, OMG do we understand what you are saying. Just had a bit of a low myself knowing how difficult it can be at times and feeling very alone and that others don’t get it - except all of us on this forum, we ALL ‘get it’. We are all on the same road and need to find what works for you, as we all do, sometimes I completely veer off in the wrong direction but manage to get on the straight and narrow again, self-discipline can be very tough. Well done Rick on all your efforts and we think your 7.9 is brilliant xx

 

[Bronco Billy]

Medical professionals (I assume it’s those who are failing to understand you) always look at diabetes and its treatment from a clinical point of view. Their experiences are formed by textbooks, clinical guidelines and case studies. They don’t live with it day to day and as a result, often don’t appreciate what we go through to achieve the results we do. It is improving in paediatric care, but I can’t speak about adult services.

 

[KARNAK]

Hello Rick If I haven`t said it before welcome to the forum.🙂 I`m one of lucky ones, my family and friends were so relieved upon diagnosis because they all thought I would die very soon and I was told by them. They do not judge me but help, its no bother when I test or inject in front of them which is every day. They all know about hypo treatment and have a good idea about carbs, I`m sorry you have had negative reactions, over the top of your head "time", or a pinch of salt sod the lot of them.😳 I have a great Diabetic hospital team and a superb surgery but know its down to me for control. Let us know how you are progressing, any problems we`ll send the lads around.

 

[Carolg]

Hi Rick43
I too am lucky that my friends and family ask me what I can have or amounts, and all recognise if I deviate from normal. They had been so worried, and like @Karnak,s family, so relieved Ithat I look and feel better. While preparing for my recent walk, my friend learned the signs of hypo or changes to my walking pattern and we made agreement for her to tell me if I didn’t notice. She was also happy to learn to rake my pockets do finger prick if need be, (luckily didn’t need to) Although i had control, I had reassurance that she had my back.
You will learn what you like and tolerate for breakfast, and just have it, and don’t let others be the expert. Your condition yours to learn to know your body, and to control. There are always “experts “who know best
Good luck on your journey

( and btw I have 1 colleague who knew it all, so I tell her as little as possible)

 

[Drummer]

Like all grain oats are 2/3rds by weight starch - my personal limit is 10 percent, so I don't even try to include oats in my diet.
I can't see any benefit from a high carb food when the only thing it has going for it is low sugar.

 

[C&E Guy]

I've found Quaker do a good gluten free porridge that I like. Alternatively, I often have 6 spoons of gf muesli when it's not so cold in the mornings. I do have milk on it but not much. That's my only milk of the day so there are a few carbs.