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Nugget

New Member
Relationship to Diabetes
Type 1
I am the daughter of a diabetic and my mother is also diabetic. My father used to manage her care and would monitor her blood sugars and did her injections. She had 4 injections a day but her blood sugar management was exemplary. Sadly my father recently died and my sister arranged a review of her care. As a result, she now receives 1 injection a day from the district nurse. Her blood sugars have steadily climbed to the 20s and by the end of the day reach 30 plus.

She has become angry, suspicious, and paranoid, her eyesight is affected and she has trouble focusing and concentrating. My sister has taken advantage of this confusion to get her to sign up a solicitor to manage her estate. However when I asked her about the visit with the solicitor she didn't know what he was there for or what she had agreed to. I discovered the blood sugar issue when my visit coincided with the district nurse and I asked about my mother's blood sugar reading and found out about the 26-plus readings. I discovered this has been going on for over 2 weeks probably since my father was taken into the hospice in September. When I had asked my sister about her care she had told me it was none of my business and they were managing things. Obviously, this was not true. I phoned her GP who said that possibly because I had raised this as a concern they would gradually increase her insulin and he would monitor it. 4 days on my mum phoned because her blood sugar was 30 and she felt really ill. We called the ambulance and they said they were too busy and to call 111 or GP. The GP wasn't taking calls as all appointment slots were filled. 111 sent an ambulance. The ambulance wouldn't take her to hospital but sent the community nurse to give her more insulin and they also contacted the doctor who will call tomorrow.

So the nurse comes but will only give her 4 units of insulin because although the prescription had been increased to 24 the nurses were still giving her 20 so she was only 4 units short that day. So this indicates to me that the nurses hadn't increased the dose as promised and the doctor wasn't monitoring the results every 2 or 3 days as promised. My mum is still feeling dreadful and her live in carer is left with no community support.

I have diabetic retinopathy and avoid driving in the dark so will be visiting tomorrow and trying to resolve this mess. Any advice will be greatly appreciated. I feel that I have let my father down by trusting my sister to manage my mums care and not being all over this sooner, As a diabetic I know how c**p high blood sugar makes you feel my sister doesn't seem to understand how dangerous this is to be this high for this long.

My mum is eating very small meals and most carbs have been eliminated from her diet to help get sugars down. She has also replaced fruit juice for taking pills with water she has done all she can to help herself and yet the sugars are still climbing.

Is this a new approach to diabetes care to go down to 1 injection or is this just a way of making things easier for the District nurses?
 
Welcome to the forum.
Sorry you are in this situation with your mother, it sounds as if it is going back to the olden days where the nurse would come to give daily injections rather than people managing their own care. Is there a reason why your mother was not in charge of her care herself as you said your father took charge.
Clearly the effect of a sudden change in regime is what is causing the high levels so no wonder she is feeling rough.
Perhaps the Diabetes uk helpline would be able to advise you when they open in the morning as they should know what rights you have for continuing consistent care. Their number is at the top of the page.
Usually people are in charge of their own care with the support of their specialist diabetic nurse but sometimes as you suspect what is now happening is for ease.
 
My mum had a stroke in 2012 so has limited fine motor skills. She also had a fall several years before and is non-weight bearing. She had become so used to my dad looking after her she wasn't even asking the nurse for her results. Now she is desperate to know and will try to take additional readings throughout the day but the nurse has yelled at the carer when they have helped her do blood tests saying she is undermining what they are trying to do. I fail to see what they are trying to do that can be harmed by my mum monitoring blood sugar levels. I cannot believe that the nurses have been in each day and none of them thought there was an issue.
 
My mum had a stroke in 2012 so has limited fine motor skills. She also had a fall several years before and is non-weight bearing. She had become so used to my dad looking after her she wasn't even asking the nurse for her results. Now she is desperate to know and will try to take additional readings throughout the day but the nurse has yelled at the carer when they have helped her do blood tests saying she is undermining what they are trying to do. I fail to see what they are trying to do that can be harmed by my mum monitoring blood sugar levels. I cannot believe that the nurses have been in each day and none of them thought there was an issue.
That is very unprofessional behaviour from people who should have her best interests at heart and be working together.
Hopefully the helpline will be able to advise you so please do call them as soon as you can.
 
Is your mum Type 1 or Type 2? Could her carers be trained to administer the injections? This does sound very bad. As well as contacting the helpline, I’d also put a complaint in writing to the GP and ask for an explanation.
 
She has been a type 2 diabetic for years and then moved to insulin to control her diabetes. My Dad put her needs ahead of his own and even when he was diagnosed with cancer refused any treatment that would affect his ability to look after her. He was careful with her diet and made sure that she ate healthily. Whenever I have been to see her food is either fishcake and chips or breaded chicken and chips. I've started cooking for her at home and taking meals with me as all the vegetables I buy for her just seem to sit in the fridge and rot.
 
Her carer is currently provided by social services and is not allowed to administer drugs or do blood tests. They can help her do a blood test herself although with my mum's motor skills she may be doing more than is permitted. She is there to assist with washing, dressing, and cooking but has limited cooking skills.
 
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