-
Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Greetings
- Thread starter Shadow
- Start date
- Status
Shadow
New Member
- Relationship to Diabetes
- Type 1
How's everyone?
I'm getting used to this malarky and not very active on posting on forums, so apologies advanced. In past years I have developed almost fobia-like condition towards social media...
Anyways. I am type one and fell ill ten years ago. I was first wrongly diagnosed as type 2, even though I didn't any single boxes at the time, apart from high bloodsugar levels. GP even didn't put me to any follow-on tests, which are required, I understood. So, over all I went 18 months without insulin.
My pet hate in the subject is how media and newspapers mix all the types together. There are lots of researches around, but mostly and mainly for T2.
I'm getting used to this malarky and not very active on posting on forums, so apologies advanced. In past years I have developed almost fobia-like condition towards social media...
Anyways. I am type one and fell ill ten years ago. I was first wrongly diagnosed as type 2, even though I didn't any single boxes at the time, apart from high bloodsugar levels. GP even didn't put me to any follow-on tests, which are required, I understood. So, over all I went 18 months without insulin.
My pet hate in the subject is how media and newspapers mix all the types together. There are lots of researches around, but mostly and mainly for T2.
Robin
Well-Known Member
- Relationship to Diabetes
- Type 1
- Pronouns
- She/Her
Hello, Shadow, and welcome to the forum from another initially misdiagnosed Type 1! There are quite a few of us on here, my GP thought Type 2, but referred me to the hospital because she said 'You might be a weird type because you're thin' ( I was losing weight rapidly!) But then the hospital were a bit slow to cotton on, and only tested me for GAD antibodies several months later. It took me a year to get a correct diagnosis and onto a basal bolus regime.
Shadow
New Member
- Relationship to Diabetes
- Type 1
Hi Robin and thanks for the reply and good ti know there are other similar cases, like mine.
I remember the day when I fell ill and possible reason why. Also, I was in that group, who believed in the myth that T1 was only a juvenile disease. I had all the classic symptoms, but it took about nine moths from me to book bloodtests. And tests I took for thyroid, because that has been haunting in the background for years.
Results came almost immediately back with BS level 28. I saw my GP, who then gave me Metformin, making me even more ill. I started to gain weight a kilo/week. Face got so greasy, I could smear a piece of bread with it.
Some occasional blood tests here and then to check how it went, but nothing useful, support or anything else before I was finallt referred to a specialist, nine months after diagnosis. He was conducting himself well, but I could clearly tell he was very angry about the misdiagnosis.
I thought I was going to hospital but that wasn't the case. Diabetic nurse put a plastix pillow on my lap and told me to stab it. That was how the injection was supposed feel like. Then she gave insulin, needles and slap on the back, saying it will be ok and I went home.
I must say that these clinics, quality of service varies so much, it's almost depressing. And these clinics are supposed to be specialising to help people like us. All they do is tick some boxes...
I remember the day when I fell ill and possible reason why. Also, I was in that group, who believed in the myth that T1 was only a juvenile disease. I had all the classic symptoms, but it took about nine moths from me to book bloodtests. And tests I took for thyroid, because that has been haunting in the background for years.
Results came almost immediately back with BS level 28. I saw my GP, who then gave me Metformin, making me even more ill. I started to gain weight a kilo/week. Face got so greasy, I could smear a piece of bread with it.
Some occasional blood tests here and then to check how it went, but nothing useful, support or anything else before I was finallt referred to a specialist, nine months after diagnosis. He was conducting himself well, but I could clearly tell he was very angry about the misdiagnosis.
I thought I was going to hospital but that wasn't the case. Diabetic nurse put a plastix pillow on my lap and told me to stab it. That was how the injection was supposed feel like. Then she gave insulin, needles and slap on the back, saying it will be ok and I went home.
I must say that these clinics, quality of service varies so much, it's almost depressing. And these clinics are supposed to be specialising to help people like us. All they do is tick some boxes...
KARNAK
Much Missed Member
- Relationship to Diabetes
- Type 1
Hi Shadow welcome to the forum 🙂. I was diagnosed 9 months after feeling unwell, only because my friends made me contact the GP. Lost 3.5 stone Doc didn`t mess about ambulance called, no messing blues & twos, straight in sorted out in 3 days since then learning how to cope. HbA1c was 156 at DX Blood sugars just said high, after spending quite a few months trawling through this forum finally took the courage to join, best decision ever. Forget how you were dealt with in the past, deal with todays situation and keep the forum up to date on your condition. A lot of very experienced people with the same amount of knowledge are available to you, ask anything you like, it would be helpful to know what medication you are on. The more info you can divulge the more educated response the members can supply, take care.
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Hi Shadow
I am pleased that you finally got the correct diagnosis. The assumption that it is T2 is a common factor in those that develop T1 at a ‘more advanced age’. I was 53 at diagnosis, but was fortunate it only took them a week to sort it out.
How are you managing? Are you on Multiple Daily Injections or an insulin pump?
I am pleased that you finally got the correct diagnosis. The assumption that it is T2 is a common factor in those that develop T1 at a ‘more advanced age’. I was 53 at diagnosis, but was fortunate it only took them a week to sort it out.
How are you managing? Are you on Multiple Daily Injections or an insulin pump?
- Status