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Eyes again

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AJLang

Well-Known Member
Relationship to Diabetes
Type 1
just as I was getting in a good place again after being offered my degree place my eyes have started playing up for the last week. I'm finding it very difficult to read even using enlarged font on screen and I'm also not doing great with the TV (not that I watch much). It's only three months since my last optician's appointment when they identified a further deterioration in my sight, down to 6/12 in my "good" eye but didnt know why it had got worse. I'm going to another optician in an hour as it appears to have worsened since then. Not sure if it is actually my eyes or the worsening fatigue that I've been experiencing.
 
Awwwwwwwww no that is really c**p news. I sincerely hope that something can be done to sort it for you, I really do. Regarding your degree could something be done with audio books or would that not be workable?
 
Thanks Diabeticliberty. Audio books would be of some help but there would also need to be a lot of reading as I need to analyse texts line by line. I was only going to study part-time because I knew that I couldn't manage it full-time but when I tried reading onscreen on Sunday it was a nightmare!
 
Sorry to harp on, I know that you must be feeling pretty rotten about it. I have never investigated 'text to speech engines'. I do know however that they are now extremely advanced. There must feel ways if making it work for you. This is of course a last resort option. I hope your optician can do something.
 
Oh AJ such crappy news :( I can't offer much by way of advice but I'm thinking of you and I hope the opticians appointment isn't too bad today!! ((hugs))
 
Thanks everyone. Diabeticliberty you're not harping on. You're not to know but I have the best text to speech equipment that you can have but I'm not good at learning by listening, I hate the voices they use AND if used to scan a printed page it gets quite a few of the words wrong. I've tried quite a lot of the equipment since a retinal vein occlusion buggered up my left macula 7 years ago - the joys of my first year in my 40's. Anyhow I'm pretty damn pxxxxxd off at the moment and in tears. The vision in my left eye is 6/48. I can live with that except the sight in my right eye (previously known as my good eye) is only 6/20 (legal driving limit is 6/12). They can correct it to 6/12 but she said that I struggled reading with that prescription AND she wouldn't prescribe it because this is my third prescription change in five months. She said that it had gone up and down and up and down and she doesn't want to prescribe glasses unless/if the prescription stabilises. She did wonder if it was diabetes levels but as my BG levels were in the 6's for each test and my last HBA1C was 6.3 that isn't a reason. So I've got to go back in a month to see if the prescription has settled (which it probably hasn't) and go round for the next month with continued cXxp eyesight which is affecting everything I do. Apologies for my language. Glaucoma appointment at Moorfields tomorrow, that had better be straightforward.
 
Don't you dare apologise for the language. In your situation I would be using stronger language than you have. It does no good for you whatsoever but I am extremely sorry for you and for the life of me with that I could offer a more substantial answer than just platitudes. I hope that you can stay strong and I hope that things work out for you. This is awful news for you and I hope that one way or another you get through it :(
 
I am sorry to hear this. I know I don't have your problems, but know what you mean about voices. I used to have a hypnosis tape made by my now retired GP , which and used for years, I then bought a Paul Mckeena one and after about a month i could not stand his voice. I also used to spend much of the time in Lectures analyzing peoples speech, and wondering if some made things sound boring on purpose!
 
Don't you dare apologise for the language. In your situation I would be using stronger language than you have. It does no good for you whatsoever but I am extremely sorry for you and for the life of me with that I could offer a more substantial answer than just platitudes. I hope that you can stay strong and I hope that things work out for you. This is awful news for you and I hope that one way or another you get through it :(
Thank you Diabeticliberty, platitudes are good. As are the copious amounts of wine that I'm drinking after days being alcohol free. Thankfully Mark started his holiday this evening so I will have 10 days of his company...,oops sorry if that sounds insensitive with your current relationship situation but I did survive a failed marriage that then led to my happiness with my M, I hope that gives you hope 🙂
 
I am sorry to hear this. I know I don't have your problems, but know what you mean about voices. I used to have a hypnosis tape made by my now retired GP , which and used for years, I then bought a Paul Mckeena one and after about a month i could not stand his voice. I also used to spend much of the time in Lectures analyzing peoples speech, and wondering if some made things sound boring on purpose!
Thank you Grovesy. I have a relaxation CD that I use, and after I worked through it several times I realised that I think that the voice belongs to Dale Winton, which makes me smile. If only other recorded things had better voices!
 
Thank you Diabeticliberty, platitudes are good. As are the copious amounts of wine that I'm drinking after days being alcohol free. Thankfully Mark started his holiday this evening so I will have 10 days of his company...,oops sorry if that sounds insensitive with your current relationship situation but I did survive a failed marriage that then led to my happiness with my M, I hope that gives you hope 🙂


Don't worry too much about it. Wine is good and I am not a particularly sensitive soul or a drama queen erm king erm drama thingy 🙂
 
Lol I thought that you were a drama king lol only joking I love your humour on the forum 🙂
 
Thank you Hobie 🙂
 
Sorry to hear those peepers are playing with you again, did the optician suggest further investigation as to why they're changing so much? My peepers are quite the naughty little blighters and my visual acuity is considered fluid (read medical speak for changes a lot) but I know why, it's the Ehlers Danlos ligament laxity issue, so essentially I have overly mobile eyeballs, it doesn't have much impact on one eye because he's tightly nestled, but the other one is smaller than the socket so he just has his own personal disco. Oh what a picture I paint, I feel I should point out its invisible from the outside and I don't look like cyclops (much). Obviously you don't have EDS so it won't be the same thing, but there are other things (including diabetes my rheumatologist told me) that can cause ligament mobility, have they investigated any of that at all?

If it helps I understand how frustrating it is, I've got similar visual acuity (although my bad eye isn't as bad), and disco eyeball drives me mental with his I can see, oops no I can't see routine. I had a contact lense for disco eyeball as well as glasses for a while which was great but disco eyeball moved too much and that caused abrasions. I had 12 months of accelerated issues after diagnosis, which is when I also learned that stress and anxiety also plays a part in ligament mobility (explains why I always had to change prescriptions when doing exams at school, college, Uni now that I think of it). There's nothing much to be done for my issues, genetic and that's that, but it does help to know what's going on and why, if for no other reason than knowing you're not losing your mind. Hope they manage to shed some light 🙂
 
Thanks KookyCat. I'm so sorry that you have the problems that you have. It must be so frustrating for you. When my latest problems started the retinal doctor at Moorfields thought that it might be my glaucoma but then the glaucoma person at Moorfields said that the glaucoma was stable. When I next went to Moorfields I was told that the layer of my retina (I think it was that) was very thin but she didn't want operate because the surgery is VERY risky and she didn't think that anyone would operate. But she wasn't certain that was the problem and I guess that we didn't expect my vision to deteriorate further in three months. Until this morning I'd forgotten about that but I'd rather have poor sight than surgery which if it went wrong could completely take my sight. I've got my first glaucoma appointment at Moorfields today so I will talk to them about the fluctuating poor vision but as it's probably not glaucoma related I'm not sure if they will be able to help.
 
I spent five hours at Noirfields today for my first glaucoma appointment there after 16 years of it being treated at my local hospital. Although my local hospital had made no suggestions to reduce my eye pressures which have been higher than they should for two years the Moorfiekds consultant is not happy with them! Some change to my eye drops and go back in 3-4 months.
Yesterday's visual test showed exactly the same results as the optician for the sight that is deteriorating in my "good" eye. Definitely not caused by glaucoma but don't know what is causing it. When I saw the diabetic eye team in Moorfields in May they couldn't see what was causing the problem but there was a note in my records about the macula. Glaucoma are contacting diabetic retina clinic to get me an appointment earlier than the one I have scheduled in November.
So sight is getting worse but no-one knows why.
 
This is terrible. I am deeply sorry for what you are going through. Did they seem at all optimistic that they can treat you and offer any kind of positive outcome? I suppose though that before being able to do this they need to properly diagnose the cause. You must be beside yourself with worry. I am worried for you. Sorry I don't mean to be negative and drag you down. I hope that you are able to stay strong. I hope that they can fix things for you.
 
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